middlesister1

Forum Replies Created

Viewing 15 posts - 586 through 600 (of 762 total)
  • Author
    Posts
  • middlesister1
    Moderator

    Hi,

    Since Lainy is off for a bit, I’m sorry I can’t offer advice (Mom had unsuccessful surgery), but wanted to add a YIPPEE!!! Successful surgeries and clean margins are worth celebrating.

    Looking forward to many more great updates.

    Catherine

    in reply to: update on gem/cis for my mom- cycle 4 not so good #87899
    middlesister1
    Moderator

    Dear Serena,

    I agree with the ER trips. During chemo, we went twice to get IV fluids, and still kick ourselves for waiting too long the first time. It was very hard to get her dressed and into the car for the trip, but the treatments improved how she was feeling significantly. We had some low fever after SIRT, but never from chemo. I would err on side of caution and at least call ONC if not go to ER. One note, we did not go all the way back to Univ of MD, but went to local ER. If you let them know she’s on chemo, they should move you immediately back to a private waiting room so she was not in an ER when her immune system is compromised.

    I hope all goes well,
    Catherine

    in reply to: My One Year Mayo Clinic Report #87218
    middlesister1
    Moderator

    I am also one of those who often feel that since I am not a patient, and additionally we are so fortunate up to this time that Mom is exceeding expectations, that maybe I should keep it to ourselves out of respect for others. At the same time, when I met with Mom’s IR last time and thought she was the only one surviving so long w/o surgery and doing so well, he said that she may be “not the majority,” but in no way the first; he said many other hospitals are having the same positive results. So, I am thankful when I see the “real” results from good news stories here that may not be reflected in the statistics.

    I agree with Marion, keep it all coming.

    Treasure each day and love to all,
    Catherine

    in reply to: Mark Volland #87900
    middlesister1
    Moderator

    Dear Kris,

    I am so sorry to read this post. Since I came on this board, the love and caring that came through and the special relationship you and Mark had was so evident in your posts.

    I love the picture and will be raising a glass on the 9th.

    Heartfelt condolences and many hugs,

    Catherine

    in reply to: Bile duct restriction #87890
    middlesister1
    Moderator

    Pat, Glad you’re feeling better and thank you for sharing.
    Take care,
    Catherine

    in reply to: My Introduction #80343
    middlesister1
    Moderator

    Happy dance here for you too! YEAH!!!!!

    Catherine

    in reply to: Surgery but not CC just FYI #87856
    middlesister1
    Moderator

    Wonderful-Thank you!

    in reply to: Surgery but not CC just FYI #87850
    middlesister1
    Moderator

    Anxiously awaiting good update too.

    in reply to: Sporadic hilar chlolangiocarcinoma #87670
    middlesister1
    Moderator

    Hi , my mother couldn’t be resected, so I’m sorry I can’t offer advice, but am so glad to hear all went well and looking forward to many more positive updates!
    Catherine

    in reply to: New to this group – stage III/IVa ICC #71244
    middlesister1
    Moderator

    Such great news- lots of us here hoping to hear many more positive results. Thanks for the update and take care.
    Catherine

    in reply to: Surgery but not CC just FYI #87842
    middlesister1
    Moderator

    So happy Robin is keeping you in the loop. Thank you!

    in reply to: Surgery but not CC just FYI #87839
    middlesister1
    Moderator

    Good luck- hope all goes smoothly. You know we all will be thinking of you.
    Catherine

    middlesister1
    Moderator

    Prayers, love and hugs with you and the family. I Hope things turn around fir the better soon.
    Catherine

    middlesister1
    Moderator

    Anne,

    What a wonderful update! We appreciate everyone taking the time to check in, but the good news ones really make my day. It also gives hope that there is progress being made in new ways to treat CC.

    Have a great day,

    Catherine

    middlesister1
    Moderator

    Dear Mauricio,

    Welcome to our group. I am sorry to hear that your Dad’s surgery was so difficult, but glad to hear that he has started to improve- I hope recovery progresses well and quickly from here on out.

    It sounds like your Dad has a team who knows him and is dedicated to making sure he has a positive outcome. .

    Positive thoughts and prayers are with you and Dad,
    Catherine

Viewing 15 posts - 586 through 600 (of 762 total)