minzzi
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My spouse used up to 35 kernels per day during a few months after diagnosis 2 1/2 years ago. It did not cure him nor did it make him more ill (he us currently alive but the cancer is advanced). The key is to build up the dosage gradually and start with only a few kernels and remember to chew them properly before swallowing.
Thanks. Luckily the fever went down last night on its own and nurse came this morning to take the blood tests once more. Once they were ready his hospice care doc called and said we should go to the er straight away as his bilirubin had risen from 18 to 72 (normal is under 21) in just one day. Crp was 79 so not really sure if it is actually infection caused by bacteria or virus but there is certainly a blockage somewhere in the bile ducts. Had to leave him there and hopefully they will do the imaging still today and ercp tomorrow morning. Im trying to stay calm at home and just remember how relatively emergetic he has been through this latest ordeal.
I wonder if the headaches he is experiencing are due to the high fever or some additional sinus infection or the bilirubin gathering in brain/head?Hi,
My bf had two plastic stents that were put right after the diagnosis. They were not monitored and were replaced only after a serious episode of cholangitis a year afterwards.. This time a metal stent was inserted but i was shocked to hear that it probably should have been done a lot earlier.
Hi,
We decided to give it a go to chemo after a year and a half of trying various alternative treatments on our own. Initially the ICC of my bf was 7cm and unresectable of course, and has since grown to approximately double the size (13cm). Stent was replaced last summer due to cholangitis (which was followed by pancreatitis).
Anyway, been through 3 rounds of Gem-Cis now and waiting for results of the CT scan that was taken yesterday. He has had very few side effects, mild nausea after first cycle, and lack of appetite which is always present.
We did ask if the cisplatin could be left out as did read from lot of places that it is nasty. They agreed to lower the cisplatin dose by 20% but that was it. Throughout the treatment the blood tests have been “great” according to onc but in my opinion not. And just generally not satisfied with the national cancer treatment here in Finland..
I was trying to ask about SIRT which is available here but apparently not to all(?) I guess I just need to gather some real evidence and papers next time to get them to think this case a bit more.I am also interested in the gene paneling, where are they available, and how would they be used to find a suitable treatment? For us they did do some small paneling from the biopsy that was taken in 2014 and nothing showed up there..
I think he is stage IV as lymph node metastases. Last MRI was taken yesterday which seems not to have changed from may. Not sure about mets in other places though. He has quite a bit of pain but is still manageable without painkillers. Extreme fatigue, fever and cholangitis have been a burden during last week. He is on invanz antibiotics but not sure if they are helping.
Also stents are probably blocked and he has had same plastic ones there for a year! Even though they are supposed to be changed every couple of months.. Another treatment failure I would say.
They did plan for a stent replacement for next week but in my opinion it should be done sooner. But I guess the infection needs to be treated first.
I am wondering about the ca19-9 markers too. My husbands values were 29 at the time of diagnosis (with inoperable 7x8cm single tumor mass), which went down to 26 with only alternative diet treatment and was 14 last April. Of course the liver tests are way beyond normal all phos being over 900 and alt ast also many hundreds.. So I don’t really see how it indicates cure progress unless it is related to the fact that there are many different types of cc that differ on gene mutation level and hence the reason for triggering malignant growth.
Hi,
My bf used protocel (which is same as cantron) for about a month. Last weekend he got cholangitis, probably more due to the fact that they placed to plastic stents to his liver a year ago and didn’t bother to check on them with imaging. Anyway, he did not present any remarkable side effects (or lysing), and he has been off it for the past week now and is just taking normal vitamins in addition to the invanz antibiotics.I am wondering though if the “lowering of ATP production” has compromised his immune system and helped to cause this infection in addition to there being a biliary blockage, but hey I’m not a doctor (even though at times wish I had chosen that career path!)
We have tried the juicing, budwig and also apricot seeds but probably nothing long enough for it to actually show signs of working.
