mj454

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  • in reply to: Is it back? #23923
    mj454
    Spectator

    Thank you so much for your feedback. I DO feel a lot better after hearing about your experiences. My sister was so concerned she called the Cancer Center of America (???) and they recommended I not wait 5 weeks to see if this thing grows or changes. I am relatively close in location to Chicago Northwestern Hospital so this gal wants me to contact them and see if they agree on the wait and see approach. She said that hospital may also say that its too small to biopsy at this point but that its better to be safe than sorry….so I have a call into them. I guess they are the closest hospital with cutting edge technology and she claims her friend had a similar experience and went there for an “rfa” procedure where they go into the abdomen with a probe and “blast” the spot out. They are supposed to call me back today and tell me whether or not they would recommend my coming in sooner.

    I guess I was just feeling so comforted knowing that my doctor claimed to have removed everything 6 months ago, with wide margins, no lymphatic involvement, no vascular invasion, etc. Now I am right back to where I was before with the anxiety and the worry. Wondering/feeling as if this crap is popping up everywhere in my body.

    I guess this worry never goes away, right Kris & Jean? We just have to keep going, taking one day at a time and holding each other up.

    Thanks so much for all your comments. I am still concerned, but I do feel better.

    Will keep you posted!
    Hugs
    Jean

    in reply to: Worried in Wisconsin #20273
    mj454
    Spectator

    Thank you all for the good wishes. I am trying to stay positive and think happy thoughts. I think that once I return to work and stay focused on something else my depression should get better too. I take something to sleep at night, which helps a lot.

    I never realized the number of people that have been affected by this terrible disease. In fact, I don’t think I ever heard of cc before I was diagnosed with it. Yes, I did get “good news” but I don’t like the uncertainty of not knowing…..then again what IS certain in this life? I guess what I want to know is ….do people actually live for many years after having been “cured” or is remission just a temporary phase and I should “expect” to get this back again? I mean, I have heard of patients having had breast cancer 30 years ago and they are still cancer free. Does this exist for cc patients or is the level of uncertainty so great that medical science does not have an answer for me?

    Can you tell……I kept myself busy all weekend and now since its basically time for bed….I am feeling anxious again!!! :) :)

    in reply to: Worried in Wisconsin #20269
    mj454
    Spectator

    Sue,

    I cannot tell you in words how much your message has meant to me. Thank you so much for your response, that is what I was looking for…..someone that had a similar situation to share.

    It has only been 5 weeks so I think that some of my anxiety is normal. I try to stay positive but its difficult at times.

    My dad had a hernia below his rib cage and had similar symptoms to yours. Those are easily repairable compared to what you and I have already been through. You try to stay positive as well and you will be just fine. Let me know what the doctor says and GOD BLESS YOU for your message. One day at a time……..

    Thanks a million!
    Jean

    in reply to: Worried in Wisconsin #20266
    mj454
    Spectator

    Who is Dr Giles?

    in reply to: Worried in Wisconsin #20263
    mj454
    Spectator

    No, the surgeon said that with the resection I did not need a transplant and that the cancer was now gone. I sure hope he is right.

    Thank you for the information. I will certainly give them a call

    Take care and God bless!

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