moose

HI,

I’ve now had 15 rounds of gemcitabine and 3 more to go….I can do this….I have to keep reminding myself every day as its getting harder. I still have my good and bad days along this roller coaster ride, but am so grateful for the treatment Ive received.

Thank you very much Anne-Marie, Genevieve, Julie and Rain for writing to me. I wasn’t expecting that and I feel very touched that you took the time to write. Thanks for reassuring me that you also felt pain, I actually have an appointment tomorrow with my surgeon so will ask him about it too.
Rain I am really sorry to hear about your Dad, I would like to email you some questions about him if that is ok.

Thanks Anne-marie for your message. I read about your story and you have had to go through this TWICE which must have been devastating. HOW are YOU now?

I am just about to leave for chemo, my 9th treatment and i have 9 more to go. I am finding it increasingly hard, and i know i am lucky to be having chemo, when others can’t.

Thank you so much for caring xoxoxox

Thanks Lainy and Duke. We are very lucky in Australia and I don’t have to pay for treatment, it is provided for by the government which is really amazing. I have been looking into payment from my super animation fund and have just found out they will pay me a % of my wage as I had an insurance clause with them. Once all this is sorted, this will mean I can take the time off work, without needing to worry financially. I am so relieved and I am just so grateful that I started a new job 2014, which had this super animation fund attached to it, as otherwise we would have been without. This has only just happened and I can’t tell you the relief I feel.

I started chemo last Tuesday, it was ok but was burning going in and the nurse kept stopping it and flushing it with saline etc. on friday my arm was covered in red marks, painful and tender. I rang the ‘chemo line’ the nurse was concerned that the chemo had leaked into my tissues ( and i don’t mean Kleenex ) To avoid this happening again, I will have a picc line put in tomorrow. Has anyone else had one of these put in? I am pretty scared about it, I didn’t want the continual reminder that I had CC and I am becoming increasingly pathetic when it comes to pain ( of course to my family and friends Im brave and don’t whinge, but here on this website…well I’m a sook and Im scared)

Thanks for listening xoxo

Thank you to your responses Lainy, Darla, Julie and Illas, I really appreciate you listening and taking the time t o reply. I take on board all your comments and they really do help, especially as i feel you all understand. its very powerful to have a group of people support you, when we don’t even know each other.
i think i feel better about the friends issue and not so hurt but realise its their own short fall comings.
i am also going to be seeing a social worker connected with my hospital oncology dept, so that will really help i think.

thanks xoxoxo

Thank you very much Lainy, Duke, KrisV and Gavin,
I really appreciate your replies and taking the time to write to me. Thanks for your welcomes, it is sad isn’t it, that we are all connected through something so horrible.
Thank you for your advice, Duke I have written down what you said and will take your advice/questions to ask to the oncologist. The reason for the gap between surgery and oncologist was that my surgeon wanted me fully recovered before I started Chemo. They have discussed my case before a multidisciplinary team at Frankston hospital and I feel confident that they have my best interests at heart.
Gavin it does feel better being able to share my story and how I feel…not something I have been able to do.
I also appreciate that I could have a successful surgery and its very humbling coming here and realising that I have been very lucky to have been able to have surgery. I am sorry to each and everyone of you for all you have been through and are continuing to go through. Thank you