newfjam
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You have a right to whine and I think you need to do a little of this. You are always the strong one, the funny one, the all time warrior. But I imagine when that strength is sometimes hard to find, that you must feel alone. You are the one protecting those around you that you love. As a fellow tough southern girl I understand your need to be in control and protect others. I just don’t want you to feel alone. Nobody wants to discuss death. I think we view anybody facing it or touched by it with discomfort. Its ok and normal that despair sneaks in…but I too know that you will show despair to the door and tell him its time to go. I also know that you have a lot of folks here that would be happy to “take him out back” for you.
Jan
Gavin, how many PDT treatments has your dad had. My husband just finished his 2nd PDT treatment at UVA in Charlottesville, VA. He is doing them every 3 months. When he was in for Photofrin shot – pre PDT we met delightful lady in her 80s who was having her 11th treatment. She was going great.
Hope your dad continues to do well.
Jan
Hello you wonderful people!! Wanted to update on the Mayo visit. It is truly an amazing place. After 8 days of testing we are back at home before we return in a week. They are going to place my husband on the transplant protocol. While at the Mayo Clinic they were able to place stents in both ducts (here in Atlanta only able to get one stent in). When we return he will start on chemo and radiation for 3 weeks. There is a “dim” spot in the liver that showed up on PET scan, but they are not sure if this is an abscess or perhaps mets. They will watch this spot – if it grows they assume mets and he will be off transplant list – if it resolves or stays the same we will go forward. The good news is that there is no lymph node involvement. Is there anyone on the boards that has had transplant?
I know this is going to be a long journey. Thank you all for being here.
Jan
Suzanne, – My thoughts and prayers are with you. I will be interested to learn what Dr. Heffron has planned for you. We saw Dr Rubin at Piedmont and he made the referral to the Mayo Clinic. When we get there next week they will do additional tests, and we will have appointments with surgeons, oncologists, nutritionist and social worker. The protocol that they are using at the Mayo Clinic is combined radiation and chemo followed by liver transplant. We don’t know yet if that is the route they will take, if Andy is even candidate. Please know that you are in my thoughts as you take this journey. None of us planned for this, but it is comforting to know we don’t walk alone. Jan
