nuclearnikki

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  • in reply to: B 4 I 4 Get Again! #89967
    nuclearnikki
    Spectator

    That’s wonderful Lainy. I wish many more healthy years for you.

    nuclearnikki
    Spectator

    Welcome Mette.
    I’m so sorry for your difficulties. You have been doing everything just as you should and fighting for your husband. How is he feeling these days? Do you have an idea of if he wants to traveling for another opinion / options?
    My dad just had his first acites fluid drained, we are waiting to find out if it is from the peritoneum or some other source.
    You are not alone in your fear and sadness, but we will get through it.
    Welcome,
    Nikki

    nuclearnikki
    Spectator

    Dad had a great appointment at WF, the professionals there were kind and very informative.

    They have had good success with this drug on blood cancers and lymph nodes and they are very hopeful for it’s success on solid tumors.

    My dad, however, has decided the clinical trial is not the right path, for other reasons. He would have to travel for chemo, blood tests, scans, checkups and more. He doesn’t want to spend his life in the car, he wants to spend it at home, seeing his loved ones.

    Moving on to Xeloda..

    in reply to: Symptoms & Paraneoplastic syndrome #89574
    nuclearnikki
    Spectator

    Thanks for the responses. You’ve helped make sense of some of the things I’ve been sorting through.

    It helps to know we aren’t alone.

    nuclearnikki
    Spectator

    (I’m hoping this post will bump the thread back to the top.)

    My dad has an appointment at Wake Forest Baptist Hospital in Winston-Salem NC, this week, to see if he qualifies for this exact clinical trial.

    I’ve very hopeful that it works out. His onc has suggested Xeloda for his second line treatment after GemCis didn’t show and tumor shrinkage, but we all agree this trial would be a better fit.

    At this point it is Phase 2, single-agent, open label..

    If anyone else is participating or has any insight, let me know. I will update if he is accepted.

Viewing 5 posts - 1 through 5 (of 5 total)