pcl1029

Hi, ladies,
Since I feel a bit stronger today( energy wise). And I love hot Mexican food.
Ted’s Italy restaurant is of course 4 stars, but Chinese restaurants are famous in cutting price and give out free egg rolls which just cause a dime to make.
If not enough, I will add a couple fortune cookies , how’ s that.
Thanks for praying for me. And give me big hugs.
It was tough the last few days, lack of energy ,a bit shortness of breath,but no pain and no N/V.

God bless.

Hi,
In my opinion, I am only a patient as Kris and your dad, iam no doctor.

As a rule of thrumb,chemotherapy of the same will continue until”disease progress or intolerable side effects occur” that is included partial response (PD)and stable response(SD) of the tumor.((Ie: tumor getting small(=PD) or no change in the tumor=(SD).

For more info on drugs used in treating cancer,the following link will be of some value. And remember, one drug works miracle for one, it does not apply to every one. And be careful, some doctor would like you to join clinical studies he or she is involved, that adds another layer of concern if disease is PD or SD.

http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=57198#p57198
God bless.

Hi,
Dr. Fong is a good surgeon specialized in larproscopy( robotic liver surgery)) , according to the fellow I talked to who is working with him.
He also one of the most experienced doctor to prescribe the FUDR pump to deliver the 5FU analog drug directly to the cancer site. The only problem is at times, it may leak at the site of incision. So check and clean the site daily.

One question, is it the primary tumor in the lung is different than cholangiocarcinoma , if not why they don’t want just use RFA or microwave to burn it off.? Get a 2nd opinion of interventional radiologist and talk about.

So far, what is your husband age. 61 just like me I am 63? And when is the date you discover you husband have CC. WHen did .Dr Fong start the 5fu pump and for how long now ( June 24till when,till now? But do have any chemotherapy before that?If they change would they aim at the lung CA or still focus on CCA as the primary cancer for treatment. If they use GEM/CIS orGEMOX OR FOLINOX then mostly is still treating the CCA as the primary.
Get your husband to drink more protein shake, soy milk to increase to protein and therefore the albumin ,so less chance for ascites.
Keep a positive attitude, always seek 2nd or third opinion on surgery after chemotherapy for a there month periodic to see the resection will be ther, also on interventional radiologist( this is the fastest moving field to help us at this point) and chemotherapy, don’ t just say yes, ask why. GEM/CIS have kidney side effects ;GEMOXhas neuropathy,other targeted therapy, TARCEVA, Sorafenib have their problem too. As and compare. It is your husband’s life , hie is not a guinapig.
My fiend, what I say may not be of any value since I am ,like your husband, is a patient for thesis disease for 52months, and I am no doctor.

God bless.

Hi, Gavin,
You know I am a pt as well as a caregiver of this CCA.
Most of the time,they will get what a bystander or nurse they know and just follow the path to minimum successful path.
Unlike some of us, he went for five opinions for his wife and planning ahead even beyound, this king of caregiver is God’s gift and they use their enggy wisely. Even as the last menu on the table that day, he will be exhaust, by they know ,they have try their best for their love one, esP those who always look under full control of them delve . I ,as a patient will salute to all those caregivers no matter how tough,and still come througheven the dinner outcome is not the best way . To those who cannot forget their passing and still count the dates and month the love one die.i prose an other message board to just honor the na me s the date they die and one sentence ( I mean ) one sentence to remenory and promised never use any message board for the subject. An no one will comment on it. If every year you will donate 10-20, we will matain your site. NO body on this board suggest this for me except,if by doing so, you got what you want and we got we we want the most is more time answer more questions for those who just join. Sorry for the suggestion .
God bless.

Hi, everyone
Interventional radiology among other radiation advancement, I am one of the proof .three weeks ago, I was told my 3 rd recurrence of CC is unresectable, well you know what kind of sinking feelings you have at that time.
But I got a consult and the doctor say yes, it can be remove my 2tumoror with microwave ,I got 2more consult on the lymph node and got three opinion, so, I had two chemo for the two liver tumor< 2cm each,PEI for the lymph node and will redo it in a couple for sure. Yesterday, I spent a couple hour for the RFA and go home this noon.
Seeking knowledge is the key but sometime when
He calls, you have to go.
God bless.

Hi,
Base on your lasts report, the best treatment is you can joint is the ” TIL trial at NIH in WashingtonDC area. And it is free.

http://www.cholangiocarcinoma.org/clinicaltrials.htm

I think your mother had go thru a lot of the chemotherapy, her body might take a bog toll already,unless she still want to fight to the last battle without realizing their are always limits in everything including medical treatinment. Quality iof life is some sometimes Better than quantity.
God bless.

Hi,,
If I may, as far as I am concern, chemotherapy agents are toxic in general. For example, 5FU or Gemzar kills cancer by interrupting their cell reproduction cycle, as well as to the healthy cells inside a human.
I am not a doctor, but I can say the above assumption without a doubt with my professional career experience.
I agree sometimes” not to be treated” is as good as or better than “to be treated” especial in some cancer patients at the late stage of the game.
I agree with Eli, chemotherapy is not only tough,but in my point of view, sometimes it is more inhuman than you think both physically and mentally speaking. I can say that because I am also a patient too of this cancer.
I think the oncologist did your mom a favor by suggesting no to chemotherapy.
I am not surprised if some doctor will provide your mom treatment knowing that it may actually decrease the quality of life of your mom.
Therefore your mom’ s oncologist do have a heart for his/her patients.
God bless.