pcl1029
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Hi,
I am just a patient,not a doctor.
How much he weight? And how tall is he.
Dose should be determined also by the kidney function.your oncologist should tell him the correct dose.
Normally it is 1000-1200mg/m2 (the body surface area square). Twice a day and take with food if it is mono therapy( that means he only takes Xeloda and no other chemotherapy.)
BTW, where you got your Xeloda? Do you need a prescription to get that. The way you said about Xyloda is like you can get it as an OTC product.
God bless.Hi,
This is from the Chicago Tribune discuss about the safety of dietary supplements.http://www.chicagotribune.com/health/ct-met-supplement-inspections-20120630,0,563524.story?dssReturn
God bless.
Hi,
First of all, I am not a doctor, I’m just a patient like your mother. I am 63, but I have 2 resections in 2 years.
If your mother is healthy and no other comorbidity, age is not an risk factor for surgery. But I think you should get a 2nd opinion from radiation oncology to see whether IMRT or microwave ablation can be of value first. The reasoning is that if radiation intervention can be done, your mother can avoid surgery , and there will be less adverse reaction overall for your mother to endure.
The key word is location of the tumor in your mother’situation. The word you use is “AT” the portal vein. As compare to near or close by. Is this the exact word they use in the cat scan report? If not, then there can be more option in radiation treatment.
5 mm( 0.5cm) is small in size. A 2nd opinion from hepatologist like Mayo or John Hopkins may be a good start to see what should be done; some times “wait and see” in 3 month and re scan may not be a bad idea.
God bless.Hi,
There are information on Our web site That are related to the Ct, MRI and PET and the link is below.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6543
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=61437#
God bless.
Hi, treejay,
Thanks for your compliment. I am very happy to hear the good news about your mom. wow is it true that has been 13 months already? time flies for sure.
And yes, I agree totally this is a roller coaster ride all the way till they will find the CURE for us. but at least your mom can has this ride for years to come.
Keep on fighting and take good care of your mom like you have done already. Not so many children can do what you had done for your mom,looking up information;traveling far far away to different places thousands miles apart across America to find the best medical care for your mom. I even cannot do that for myself .
keep in touch and
God bless.Hi,
To be truthful, other than patients that are in the clinical trials, complimentary and alternative treatment (CAM) is not a bad idea. The problem lies on knowing what and which to use to provide the desired benefit?
I sincerely believe even doctors are not sure about what to use in CAM due to the vast choices and the busy schedules for all the doctors. and that is why most of them do not recommend Herbals or supplements.
I think they will prefer to spend more time ,if they have ,to up date their knowledge of their own field besides see patients, attending their own institutional medical and administrative meetings;doing research and attend medical conventions. Don’t you think so?It is not the doctors’ fault,but think about in this way; would you like the specialists ,like oncologists or liver specialist ,to concentrate more on their own fields rather than become a “jack of all trades”?
That responsibility ,if you choose CAM, should lies on the patients as well as the caregivers and their personal belief of using it rather than venture out of the current western medical domain.
but if you want to do so, which about 90% of the patients and caregivers will do so according to a study; University of Pittsburgh and Sloan-Kettering are two good places to start. our own web site under the experience forum of CAM is another source for it.
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=5931
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=6273
For me, CAM is difficult to find experienced practitioners to provide good results besides minimal benefits. and I do not think FDA, in the near future will attempt to provide additional guide lines besides classified them,such as for the herbal medicines, as food items.
God bless.Hi,
The answer is no.,most of the centers will not do liver transplant if there are lymph nodes involvement unless they want to use you as experiment .
If they do the transplant with nodes involvement , most likely the cancer will be back sooner than expected and chemotherapy will be the systemic way to treat cancer with mets. The same may be applied to abandon the surgery and closed the patient up without removal of the canncer after discovering there were mets beyond the liver .but each center’s protocol is different ,so may be some will do it after all.
God bless.Hi,
To tell the truth,I really don’t know,I am sorry. but I am a 36 months survivor I hope my picture on this web site will give you some idea of what a CCA patient looks like after 3 years of battle.
I always treat this cancer as a chronic disease like hypertension or diabetes;it requires patience,courage and knowledge to manage such a roller coaster ride.
It is not easy to do so; emotional and physical ,it can be very exhausted.God bless.
Hi, Pamela,
I am sorry to hear about your comment.
But please just wait until the next MRI scan result and the doctor appointment to find out exactly what that dark spot is;it may be just a dead space or something of unimportance. Like the PET scan ,it doesn’t mean when something lights up inside the body,it will be a tumor; it may be just something else like infection.
I will ask my friends in radiation to seek more answer about your situation.
God bless you and your daughter.Hi,
I talk with the nutritionist ,the BMI figure is correct .
1. <25 is normal;
2. 25-30=overweight,
3.>30 is class 1 obesity
and when the BMI is between 30-40 , then it will be obesity class 2 and 3.One of the formula to find our your BMI (Body Mass Index) is
your weight in pounds x703 divided by your height in inches twice.
For example if you are 155 pounds and you are 5 feet and 6 inches(66inches) tall your BMI will be:
155×703=108965 then devided by 66=1650.99 and again devided the 1650.99 by 66 ;the result is 25.01 which is the high normal or they can call it overweightGod bless.
Hi,
Dr. Howard Bruckner is using a different approach — his chemotherapy is to use more agents ( up to 5 or 6 different agents) combined together but at a lower dosage for each agents. He is not new to us on this web site; some of our members were treated by him at his NY office .
Below is a link to see part of his treatment plans.http://www.asco.org/ASCOv2/Meetings/Abstracts?&vmview=abst_detail_view&confID=114&abstractID=101011
God bless.
Hi,
I agree with you about God’s power and His character and he is the creator of us in the image of HIM.
I also ,as a patient, I hope whatever choice you make or will be made is within the character that God given to us like to love one another and to seek courage and knowledge to benefit you and others because you are part of His body.From this context,as a patient and a Christian myself, if I may suggested to you ,to seek a 2nd opinion by a radiation oncologist on chemoembolization .
God bless.
