Pspino418
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Here we are at Feb. 25 and so much has changed. Jim was in hospital for 10 days due to bleeding ulcer. Got that controlled by embolization. His ascites has increased. The last 4 days in hospital, he was walking laps around the floor. Since he has been home, he is eating well and all but is still declining.
We met with oncologist today. She said that we are in a tough position. His body isn’t holding up to chemo and cancer is beating him up. Sounds like we are out of options at this point. Discussion happening now about tap or shunt. Please pray for us.
Thank you
Patti
The 2nd line treatment they may use is 5fu / Folfox. Anyone have any feedback on this?
Also, we now know that there are approx 7 lesions on liver with largest being 14mm and smaller approx 5mm. He also has a small amount of ascites. They said to try and grin and bear the uncomfortable feeling as it isn’t enough to make them want to drain it, which sounds awfully painful. If anyone has any ideas on relieving the full and bloated feeling, we would appreciate it.
Thanks everyone.
Patti
Hello to everyone – We are at hospital today to meet with oncologist and reviewed yesterdays scans. CT scan is showing the two small marks on the liver that were noticed in October are now a little larger and there are a few more tiny spots. She indicated that the two spots that grew are being considered “real”. No other areas of concern.
We are starting the gem/cis chemo again today. His platelets are only 124k but we are going to give it a go. If his platelets become too low for week 2, the plan is to switch to another chemo that isn’t as hard on platelets. I will have to look it up and will let y’all know. This is very concerning as there is now metastatic disease. We lost so much time over the winter months when his platelets were not holding up enough to have chemo. So frustrated. I’ll pop on and mention the alternative therapy she is suggesting and would like any feedback or comments. I could use some support with others that have been thru this. Thanks everyone. Best wishes,
Patti
Thank you Mary. We met with one oncologist today and will be going to the University of Maryland Medical Center in Baltimore Tuesday.
Today’s appointment was informative. He suggested radiation and chemo combo first to try to prevent further disease progression as Jim did not have negative margins, but displasya and Ca in Situ remaining after his CBD resection.
He did have one node positive of 6 and they have said this is Stage IIA.
We are fortunate to have a friend in the field that is guiding us and help us make decisions. It is all so overwhelming.
I dont know if this post makes sense, but please feel free to ask questions or tell me if I post incorrectly.
Love to all
Patti
