puggle
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Thank you so much Peter, Kate, Patrice for your words of advice. I’ll be sure to post anything we find useful. All the very best, Emma.
Thank you so much for your response and I am so sorry to hear about your sister – I hope that, nausea aside, she does well on this course of chemo. My partner has also been very nauseous, his sense of smell has been dramatically altered and has been feeling very low, but we are doing the very best we can to keep his fighting spirit up. He has been prescribed several anti nausea drugs by his oncologist – For two days after the chemo he takes dexamethasone and granisetron (kytril), and then on a regular basis for the rest of the week (up to every six hours), metoclopramide and lorazepam. I don’t know if these specific drugs would be suitable for your sister, but if you have not already disciussed anti nausea medication with the doctor it might be an option worth exploring. It is also supposed to be useful to sip ginger tea and to eat six small meals a day instead of attempting three main ones. If it is of any consolation we have read alot of good things about gemcitobene.
We are going to see a naturopath this week so it will be interesting to see what she suggests ….
Positive visualisation imagery is something we’ve read alot about – I don’t know if you feel it would work for your sister, but it might be worth a try to make this whole experience more bearable. We’ve read several books published by cancer survivors and meditation and positive visualisation come up alot. As do the importance of good nutrition and supplementation via a qualified professional i.e. naturopath/nutritionist.
I just hope that some of this is of use. It is so hard to know what to say because this can effect every individual so differently. There also seems to be a distinct lack of information on Cholangeo specifically. Like jmoneypenny I have never heard that yoghurt is bad and my partner has been having natural bio – yoghurt daily in smoothies, and these are great for when he doesn’t feel like eating much – I have no idea if this is the right thing to do!
Much love and luck to you and your sister, and we will post anything else we find of use!
Emma.
Hi everyone,
Thanks so much for posting all this dietery information – I too am in the process of devising a suitable diet plan for my partner who has just been diagnosed. I have ordered Quillens book, but it is not due to arrive for a week or so. I am a little confused as to just how much juice is recommended a day. He is currently on a course of Gemsar although the oncologists have made it very clear that 1. it may not work for him at all and 2. It is likely the cc will eventually become resistant. I am desperate to have a solid and well-researched vitamin/supplement/diet programme in place for him both now, and down the track. He means the world to me.
Any advice would be most appreciated at this horrendously difficult time.All the very best to you,
Emma.
