ranner
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Just to present myself.
My father age 64 was diagnosed with cholangiocarcinoma and spread to the liver in february 2005. He was offered chemo but not as a cure. He went on the chemo regime with oxaliplatin and gemzar and xeloda. His tumor regressed sligthly but has now progressed and they have stopped offering chemo. So now I am desperate for starting a new battle against the tumor. But here in Denmark if one thing doesn’t work you are not likely to get the chance to try another thing.
My dad has also lately had violent shivering because the temperature rises so quickly. He was admitted to hospital on jan 14th and had one ercp and three tries of ptc and lots of antibiotics Now the have told that they can no longer do either because it is to difficult. So they sent him last thursday. Saturday evening admitted again because of fever. They opened the ptc-drain and bile is coming out in a bag. I would go with jules it might be bile trying to get out but cant it causes fever quickly.
Randi
Hello again
Thank you for your replys I found both the chemo site and the sits for trials. But I live in Denmark, Europe and our lab results are for instence measured in bilirubin lower than 22 if you are healthy. But in USA it is to be lower than 3 mg/dl I believe. How can I convert these number into european numbers.
Kind regards
Ranner
stacie wrote:Ranner,Have you looked at the chemotherapy spread sheet? You might have your Dad take that in to his oncologist and see if he would be willing to try a different combination. Their are lots of oncologist trying lots of different things. Those are all drugs that people with cholangio are wither using, are being used in clinical trials or researchers are looking to use them against cholangio – ofcourse, nothing proven, but nothing seems to work for everyone with this disease.
The other option is to get him into a clinical trial. That spreadsheet is also available (under the blog heading) and that may be his best shot, especially if his oncologist doesn’t feel like there are other options – there are always other options. Good Luck – let us know how it’s going.
Stacie
My father age 64 was diagnosed with cholangiocarcinoma and spread to the liver in february 2005. He was offered chemo but not as a cure. He went on the chemo regime with oxaliplatin and gemzar and xeloda. His tumor regressed sligthly but has now progressed and they have stopped offering chemo. So now I am desperate for starting a new battle against the tumor. But here in Denmark if one thing doesn’t work you are not likely to get the chance to try another thing.
Any advice would be much appreciated
