rarebreed15

As I stated on the other discussion board. I had very good results after my scan on Aug 26th, My Dr told me that the CT showed a 20% shrinkage of the tumor. She was very pleased with my results. I had only started chemo at the end of June and I am still on the clinical trial MEK 162.
I see Dr Lowery at MSK in NYC.
Wishing all my fellow CC people good luck with their results. My next scan will be at the end of OCT.

_Diane

Good luck to you Susan, I think we will buy tickets to a show for a Wednesday night since I usually get my chemo on Wednesdays. I know I will be getting my next CT on Aug 19 along with an eccho, not sure if they will have me get an mri of my spine then too. I hope I feel ok a couple of days after getting the port. I’ve been walking 2 miles most mornings before the heat hits to keep me from being lazy
Have a safe trip to NYC.
-Diane

Hey Susan, I met with a surgeon Peter Allen and he told me that maybe down the line he would put a pump on my liver to bathe it in chemo. I’ll wait and see what happens. Kudos to you coming all that way. My day is a 12 hour day when I go to city from the time I leave my house either by train or car till when I get home in the evening. Had my second treatment with Gem/CIS yesterday and I don’t go back till 7/15 but I’m going to get a port put in so I don’t have to deal with my veins going bad later on. So I’m waiting for the scheduling department to contact me.
I feel great this morning and got out and walked the dog first then dropped him off and went for a two mile walk. I need to be active to avoid being bored. I’m not used to not working. I usually work at a sleep away camp and I’m usually away for 9 weeks. I drive a bus there and go on trips about 5-6 days a week. Always surrounded by friends and 500 campers. Camp started yesterday and I miss it big time and i’m in contact with my friends and they say it’s just weird without me. This would have been my 8th summer. I’ll visit when I can.
I have friends that have dropped off dinner on my days I go to the hospital so it makes it easier for us.
Good luck with your treatment. Maybe we’ll cross paths one day. I guess you go to the third floor at 160 E 53rd? I go to the 4th floor

Duke,
Was the pain due to the combination of MEK and chemo? I know that the liver and right shoulder are somehow connected.

Thanks for the optimism boost. It’s always been my personality to see the sunny side. I have no reason to change it. I’m hoping it keeps me healthy. Unfortunately this has kept me from doing my favorite thing which is working at a sleep away camp in upstate NY for 9 weeks. I guess I will need to find new things to keep me busy.

Wishing everyone here positive and healthy vibes.
-Diane

Thanks, I have to tell you that I was so comfortable after meeting everyone at MSK. Dr Lowery is wonderful and that’s just after one meeting. This is her speciality. I didn’t think I wanted to travel back on forth to the city for treatment and with the clinical trial I have to go to that office. But everyone there makes you feel good and important. We had some questions before we were about to leave and the young woman behind the desk instead of picking up the phone and calling, went to the back and got someone in about 1 minute. They didn’t say oh we’ll get back to you or wait while I try to get someone to answer your questions. They all seem to be attentive.
This clinical trial is in phase2 already. Hoping that it works and moves onto phase 3.
I wish everyone on this site good luck .

Thanks, always been a positive person, hoping it makes a huge difference now.
Just curious how many people here are woman and in their 50s. Any using MEK162 inhibitors and how they’re doing with it.