rhonda

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  • in reply to: Dad’s mood seems to be getting a bit worse. #24482
    rhonda
    Member

    Hi Gavin
    many years ago a friends daughter ( aged 14 ) had a rare cancer, her fight only lasted 12 months, but they both experienced similar to your father, The daughter was in a wheel chair at the end, her mother would take her out shopping or to the doctors etc and her friends and family friends would ignore her, very sad, I hope nothing bad ever happens to those people or they might get the guilts, when it happens to them.
    Stay positive!!

    in reply to: Chemo after surgery #24404
    rhonda
    Member

    hey gale dont be afraid of lossing your hair, If the pill does the trick, its worth the loss of hair, you will still be the same wonderful person. My mum got told she had a good chance she would not lose her hair, but after the first round of chemo she did, Good part was she was also told it usually made people sick, she was lucky, no ill effects were felt.
    rhonda

    in reply to: my mother has Cholangiocarcinoma #24391
    rhonda
    Member

    hi Patty
    My mums cancer was discovered by accident. She changed doctors because she moved, She was concerned with a few minior things, 1 being a lump under her eye that she had had for years, The doctor advised her to see a specialist and get it removed as they can be come nasty but looked fine at the time. She also had to see a surgeon about an existing shoulder injury. She was feeling fine, but had some problems eating certain foods. My mum reguarly went for a walk, when she became dissy and slightly out of breath a couple of times, she returned to the doctor, She thought she was just getting worried about the ops, The doctor ordered chest scans etc, and found shadows on the lungs, blood test followed, which were not that bad, but slightly to high in the liver results, this lead to more test, and here we are today, 12 months later, with cancer all through her body. No yellowing, blotting and her colonoscopicy and endoscop were clear.
    We have had a pretty busy 12 months of Chemo, but managed some special time too, trips away and lots of talks.

    in reply to: my mother has Cholangiocarcinoma #24389
    rhonda
    Member

    hello to all, Thank you for the kind introductions. Yesterday my mother was told the cancer had ( met) to her shoulder, she is hoping to have radiation this week, & in hospital at present to start serious pain management.
    I just wish we all new how to stay I step ahead of this rotten thing.
    I have read that a lot of the patients with cc, have had stints in the bile duct, Is this common for later stages of cc, as my mum has no Jarundaise or bowel problems.

    in reply to: my mother has Cholangiocarcinoma #24385
    rhonda
    Member

    thank you tiapatty,
    My mum is in Qeensland Aus, She is nearly 61, We are heading to 12months of cc, My mum has secoundary tumors on kidney, lung and surface of head. The primary was not fully diagnosed, but the closest they came was cholangiocarcinoma.

    in reply to: my mother has Cholangiocarcinoma #24383
    rhonda
    Member

    I have been reading quiet a few of the posts am feeling really sad for those of you who are suffering with so much pain and illness. I am feeling lucky that my mother has not felt sick or in pain,which has been managed with medication ( mainly Panadol) My Mother has had Gemcidabean and another chemo drug, this was given every 3 weeks for a 24 hour period. Not to many side effects, and reduced the tumors on her liver and kidney slightly. Now she is having chemo weekly for 6 weedks with a 2 week rest and seems to keep the liver results (blood test) down, but she is becoming weaker. The family have been told the cancer is very aggressive and once chemo stops working my mum will have 2-6 months. I am finding it hard to stay 1 step ahead and be prepared for the illness and side effects of the cancer, but information is limited and the cancer seems so different for every person.

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