rose-may
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The doctor called today and informed me that because the bilirubin levels have not changed that the stent probably is plugged. It looks like I will have to get another stent that drains into a bag early this week. Darn!!! I was so looking forward to havng the stent placed and experiencing some relief from all this and having a stretch of time at home being normal.
I slept all day under the influence of the oxycodon and will probably have to take another tonight so I don’t get my sleep biorhythm all out of whack. This whole ordeal is so all-consuming, it really takes over doesn’t it!
I have had that burning pain as well, mostly at night. It feels like heartburn in my entire stomach area.
Nights are the worst. Between the itching, the inability to get totally comfortable in any position, the nighttime obsessing about the whole thing…..I have set up tapes to listen to, books to read, prayer tools to pray with in the night….but when it comes down to it I’m feeling too rough to do any of that. Losing myself ont he computer seems to actually help the most, as long as I’m not reading up on the poor prognosis of this type of cancer anyway.
Nice to have a place to complain where people REALLY get it…….
I haven’t cried much yet but hope for a good long cathartic cry at some point. right now my abdomen is so tender from having a stent placed and an inflamed pancreas reaction that it hurts too much to cry even if I could. It hurts to laugh too which is worse. I’m sure the tears will come when you feel saffe enough and ready to discharge some of that pain.
Darla:
I am also in Wisconsin. I live in Viroqua and am going to the University hospital in Madison for treatment.
Hi Elizabeth. I too have been the picture of health and this came out of nowhere. One of my strategies to cope with this devastating diagnosis will be to try to keep myself as nourished and active as possible so the rest of my body can be strong enough to compensate. Don’t know if I am deluding myself but we have to try everything. I am also trying to use as few drugs as possible, so far just a 5-day antibiotic because of the stent and occasional pill for the itching and sleep deprivation.
Rosemay
