shelley
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I HATE throwing up.
I hate my hurting arms and feet.
I hate not always being able to drive myself.
I hate not being able to cook and shop.
I hate my thin hair.
I hate taking pills.
I really hate not being able to participate with my children.
I hate so many other things about cancer.Thanks for the welcome!
I will try and repost my first post to Introductions (if I can figure out how.) I got my first scans back and had an overall 23% reduction of tumors. I have many, especially in my lungs, and it looks like they are only going to report on three of them. The one in my liver went from 9.2 cm x 4.5 cm to 7.5 x 3.6 cm. Left lung from 2.2 x 1.4 to 1.01 x 1.3. I am very happy (I would have been ecstatic with 100%) with this result and look forward to more improvement.
I have had side effects, the neuropathy in my arms has been the hardest. I got to the point I couldn’t put on or pull off a shirt. The pain let up for a few days on the break but I am 5 days into the third month and it is back. Last week the doctor had considered lowering my dose but so far I am still at 125 mg. I’m hoping I can hold on at this dose until I see more improvement.
I hope you all are well,
Shelley
Hello Everyone,
I just started BGJ 398 six weeks ago and I am so happy that I found this discussion board. So far I have had the loss of taste, hair thinning and high phosphate levels that have been mentioned before. I’ll have my first scans on January 25th and I am hoping for the great results some of you have had. Thank you so much for posting your results. It makes it much easier for me to know how it is going for the rest of you.
I am in Atlanta and there are two of us on this study. I have not met the other person yet.
Shelley
