sherrig

Just remembered he is on compzene and zophran. Thanks for all of the responses and help. I pray for everyone that is here and hate the things tht everyone is having to go through.

Sherrig

Hey Jeff
I am so sorry to hear what you are going through and I know the Tarceva is going to do the trick. You are an inspiration to everyone and I know that God is going to take really good care of you. Keep in touch. Our prayers are with you during this time.

Sherrig

Well here I am at my Mom’s as i have been trying to spend as much time as possible here with mom and my step dad. He decided onFriday no more chemo and to just do hospice. The chemo is literally killing him faster than the cc is. He hasn’t eaten a full meal in weeks and is so week he can hardly take a shower. He sometimes can take a bite of food and that is all and just to take a drink of water just makes him sick. He says he has the worst taste and that everything he puts in his mouth just makes him so sick. He is so pitiful and it is so heartbreaking. He hospice nurse has been in and has added a second neausea medicine in hopes that it will help. He is just so neausous he can’t stand it. The weakness is getting worse from lack of food. He says he isn’t having much pain but from the looks on his face and the moaning that he does I think he is in pain which he is on Oxycodone and Loratab. We are trying everything we can to help him overcome the bad taste but just aren’t having any luck. He is literally skin and bones except for the large abdominal area. If anyone has any suggestions on what to do for the severely bad taste and neasea Please let me know. I know he gets so tired of us asking if he wants to try this or try that but it is so hard to watch someone not eat or drink or if they do it looks as if it is so painful. What to do? The only good thing is that he is resting really well at night sleeps about 10 or 12 hours. The doctors had told us that he probably only had about 3-4 weeks left. How do they know that? I do know that when my dad had colon cancer they gave him 6-8 months without chemo and 8-9 with chemo and he was with us for 8 1/2 months. I just feel so helpless and wish I could do more as I know everyone here does.

Hey everyone

Thanks Jeff for sharing and he did feel better for maybe a day. Hasn’t been able to eat any solid food drinking Ensures mostly. Had a really really bad weekend and thought they were going to have to call an ambulance. He was just in a lot of pain stomach getting really large and hard again, restless, having difficulty breathing and just really sick. They did call the Dr on call and they had him take a couple of pain pills and neausea medicine. A couple of days later he still wasn’t better just getting worse. They went in yesterday to drain more fluid but it wasn’t fluid. they said that he has a large blood clot in his lung and has to have a shot in his stomach every day. Is this related to the cc or what? I hate not being there because my mom just doesn’t ask a lot of questions just because I think she just doesn’t want to know. He has a pet scan a couple of weeks ago and ultra sounds and blood work yesterday but they don’t know any of the results from the pet scan. I just hate that he is going through so much and just is happenning so very fast. Just a month ago he was doing so well considering. Mom said yesterday that he looked really bad.

Sad Son

So sorry to hear your mom has this terrible disease. My stepdad has it and yes a second, third or however many opinions it takes is so very important. If we hadn’t gone for a second opinion my stepdad would have passed 2 years ago. Even after that in June after we were told to let nature run it’s course we still didn’t stop. We went back to his surgeon who did his liver resection and he said absolutely we can do something. It is not going to cure him but it will at least give him more time with us and most importantly help with pain. I lost my dad, grandmother, father n’law and sister n’law to cancer and you have to consistently search for new and better treatments as there are people out there who have dedicated their lives basically to finding help for people. I think the main thing is knowing for sure what is wrong and that you did everything that medicine can do and then the rest is up to only one person. Hang in there!!

SherriG

Update on my stepday and hope for some words of encouragement and help. I posted last in June about my stepda’d oncologist telling us it was time to let nature run it’s course and we decided to go back to the surgeon who did the liver resection almost 2 years ago and he hadn’t even been cc’d on anything in regards to what they were doing for him. He said he wanted him back on chemo which he had only taken once and that was a year and a half ago. Well, 2 weeks ago they did a pet scan and then put in the port to start chemo which is suppose to begin this week. But over the last 4 weeks he has gone down really fast. He can’t eat, sleeps all the time, is in a lot of pain and is having trouble breathing. Why do they wait so long to take action? I just don’t get it . This is a precious life we are talking about and they just see when they can put it on the schedule. His cancer that we of is back in the liver, many lymph nodes in the stomach area, the entire chest wall cavity and the sternum. Has anyone been at this point and found help or treatment that worked. My mom is just having such a hard time and we are not giving up. It is just not fair. Where do we go from here? What happens toward the end?