sirena
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sirenaMember
Hi positivity,
First of all, so sorry to hear that your mom has a Klatskin tumor and that she had such a bad experience with an incompetent doctor. I hope she is in better hands now.
It’s been a while since I last logged on. Unfortunately, things have gotten worse for my mom. A tumor was found in her duodenum, causing her pain and difficulty when eating. She had a stent put in but still has trouble. On painkillers and has lost a lot of weight. I fear that things will only get worse and don’t know what I can do at this point. Would appreciate hearing from anyone who’s in or has been in a similar situation.
I wish you and your mom all the best, positivity. Staying positive in such tough times isn’t easy but don’t lose hope.
Sirena
sirenaMemberMom no longer has stents after her resection. Thankfully, she’s been discharged from the hospital and she’s doing better now. She’ll finish her radiotherapy treatment and be given chemo only if her health improves. Thank you so much for replying. Am trying to stay optimistic and realistic at the same time. Admittedly, it isn’t always easy!
sirenaMemberMy mom has now been hospitalised after developing a fever. She is still having radiotherapy. I wonder if the fever is a side effect of radiotherapy. Does anyone know? Thank you in advance.
sirenaMemberThank you for replying, Lainy and marions. My mom is in Hong Kong. I, however, am not. My dad takes care of her and all I can do from afar is Skype with them and hope she’s getting the best treatment possible. I’ve been reading up on Klatskin tumor related posts here but it’s depressing that the survival rate for this particular cancer is so low. I guess I just have to be realistically optimistic as I’ve been told to but it’s difficult. Thank you again for your support though. I feel less alone.
sirenaMemberHello everyone,
After a successful operation to remove the Klatskin tumor in October 2014, my mom’s cancer has recurred. She’s currently having radiotherapy and having some tough days. After having blood tests done, she won’t be offered chemotherapy. I’m not sure why, but wonder if it’s because her general health is considered too weak or potentially worse…? I’m afraid I’m falling into depression at the thought of losing my mom and don’t know what I can do to support her.
Sirena
sirenaMemberHi all,
It’s been a while since I’ve logged in. I just realised that it’s exactly a year ago that I registered here. I’ve had a bit of worrying news regarding my mom. Was hoping for an all clear, but while her scan results show nothing, her blood test result was different and the doctor says it could be recurrence or possibly nothing, depending on follow-up tests. Has anyone been in a similar situation or does anyone know anyone who’s been in a similar situation?
Many thanks,
SirenasirenaMemberThanks, Gavin! Thanks to everyone for the positive vibes. I’ve been so self-absorbed that I forgot we’re all here for similar reasons. I’d like to send positive thoughts to everyone as well. All the very best!
Sirena
sirenaMemberThank you, Lainy! Surgery is already over. Took 13 hours on Wednesday. Really appreciate the good vibes!
Sirena
sirenaMemberThank you, Gavin and Marion. Doc says about 5 days after the operation is when we really need to be on the lookout. Please pray that all will go well for my mom to whichever god you believe in. We need as many good vibes that we can get sent our way!
Sirena
sirenaMemberMarion, I can’t as I’m now in a different country. My family and I were scheduled to relocate less than a month before news of the cancer. Having to leave my mom was the most awful thing. My dad updates me on her condition but I miss her and wish I could be there for her.
Sirena
sirenaMemberThank you, Marion. I’m just worried because there are always risks involved. Still dunno whether the operation has completely removed the cancer, but I guess only time will tell…?
Sirena
sirenaMemberLong time no write!
My mom finally had surgery on Wednesday. Now the doctor says the biggest risk is liver failure. I’m so scared for her. Does anyone know how great this risk is?
Sirena
sirenaMemberHi Serena,
Thank you for sharing your experience. I’m sorry to hear that your mom’s recovery has been a roller coaster. I can’t imagine how difficult it must be to watch her recover from such a major operation, but I hope that you can also be strong for her.
It’s been comforting to know I’m not alone. My mom’s jaundice is getting better but surgery has still not been scheduled and it has already been 7 weeks now. I’m trying not to worry and praying that she’ll be well enough for it soon. That is all I can really do. I tell her I love her every day. I was never able to do so before all this happened, and now I just feel like every second is precious. I can’t waste my energy on negative thoughts and I have to make the most of life because you just never know when a curve ball will be thrown your way.
I will also be praying for your mom’s speedy recovery. Let’s hang in there.
Sirena
sirenaMemberDear Kris,
Thank you for the advice and for sharing about your husband. His case sounds very similar to my mother’s. Was the operation he had a liver resection and how is he since? I hope he is recovering well and that you are staying strong.
Sirena
sirenaMemberDear Catherine,
Thank you for sharing your experience.
Since my mom’s diagnosis, I’ve told myself not to worry in vain, to stay positive, to appreciate the little things in life and to take things one day at a time. But there are days when I just feel angry and can’t understand why this is happening. Sometimes things feel like small miracles and at other times they feel like small mercies. I’m gonna try to see them as small miracles as you mentioned. I know things could be a lot worse.
Thank you for helping me to stay positive. I wish the best for you and your mom.
Sirena
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