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I am so sorry that your precious daughter has to experience this. My husband had a lot of trouble with lower belly pain and gas. It was almost always constipation. He began taking a stool softener with senna (a natural ingredient) on a daily basis and he also kept magnesium citrate to help move things along when he needed quicker relief. I hope this help. Check with the doctor as it is true (like Kathy said) that morphine can cause constipation. Looking forward to hearing more and that your daughter experiences some relief from her pain. Blessings, Susan
Dearest Aimee – This is a lot for you and your young family to handle. Attitude will be your best friend – remain positive, seek another opinion or two, create lots of memories to cherish for your whole lifetime. This diagnosis is daunting, but sometimes, it gives us the opportunity to make the most of whatever life we have. My heart goes out to you and your precious little babies. Please share often with us as we care about your journey. Blessings, Susan
Dear Julie – I am so sorry that you and your family have to deal with CC. I am glad that mom is getting treatment at MD Anderson. There is so much that goes in to living with cc and we are here to listen to you, vent, share, cry, and care about your journey. Please keep us updated about mom and how you and your family are managing. Blessings, Susan
Dear Jeremy – I am so sorry to hear of the loss of your mom. It is wonderful to hear that you have inherited her fighting spirit and want to invest your energies as an educator/advocate for this disease. Blessings to you, Susan
Dear Pk – Thanks for the update. Good news is so welcome. Keep us up to date. We’re thinking of you. Blessings, Susan
Dear Michele – My heart goes out to you. Mother’s Day is a tough one. Celebrate some of your favorite moments with your mom if it isn’t too hard on you. Maybe write her a letter. Know that our hearts are with you as you find a way to make it through the day. I also believe that your dream was a gift and pray that perhaps you will have more in the future to bring you comfort and joy. For now, I pray peace for you. Blessings, Susan
Oh Mazduc – You did not let her down. You have done all that you have known to do and more by loving her. It is hard for you and you want to do more, but just hold her and share your love. Hospice is not giving up, it is opting for more comfort and peace and support for all of you. You have done a great job. Hold her close, whisper sweet nothings and sweet somethings in her ear, and thank her for being who she is and what she has added to your life. blessings and strength for the coming days, Susan
I am so sorry to hear of the passing of your mother-in-law. What a wonderful blessing that you got to share your life with her. I can tell from your posts that you treasured that relationship. Through the pain, hold on to the memories and cherish them. She will live on in your heart and in your memories. Share her story so she lives for others as well. Blessings, Susan
Dear Mark – It is so good to hear that your dad was diagnosed early which really helps with treatment options. Chemo seems to be the treatment of choice most of the time even when resection is successful. More of a preventive measure. Please let us know. I am so glad that your dad had this report. Keep posting. Blessings, Susan
Dear UCLA – I think your dad will be strong enough to see you graduate. He is at Stage 3 and there are 4 stages. I would do as Lainy said and get another opinion or two. You are in a major university and there are others very close so check them out for who has the most experience with CC. It is a rare cancer so you want the most knowledgeable, experienced doctors to tell you about the treatment options for your dad. Klatskin tumor is common in bile duct cancer and you can use the search box on top of this page to get more information on that and CC. Do your best at school and graduate – you will have plenty of time to help with dad, spend time with him, research cc once you have graduated. Let him celebrate this major life goal with you – he will be so proud. Keep posting so we can keep up with your progress and your dad’s. Breaking down and crying is very good for you – if you try to keep it inside, it will break down your health, your mental outlook and depress your spirit. Get the feelings out and then graduate and love on your dad. Blessings, Susan
Could you ask Wayne to ask Randy what I did with our W2’s? I can’t find them anywhere and I used them to get the taxes done. Now the IRS wants copies and they are nowhere to be found. I go where all the other papers for the taxes are, but no W2s. I’d love for Randy (or Wayne) to let me know where I put those darn things.
I am a great believer that our loved ones can see us and even help us. I think they are probably busy doing other things too, after all, their Father has a great universe to care for. I spelled Randy’s scent so strongly last week in our bedroom. I just breathed in as deeply as I could and enjoyed it so much. Then I laid on his side of the bed for just a few minutes and said a prayer of thanks for the visit. I think we must be open to these times with our loved ones. They mean so much.
Andie – You are a loving daughter and you are doing all you can. You must take your own time to grieve. It might help, when Mom starts in to say, “Mom, this is so hard for you. You are used to having Dad there. I bet you get really mad. I know I do. Isn’t this the hardest thing we have ever done?” Maybe holding up a mirror and reflecting for her will let her feel that you care very much about how hard this is. I know that I get mad sometimes when I have to do a job that was my husband’s job, like the swimming pool. I don’t know what I’m doing and I never wanted to do this job, but sadly, it’s my job now and I will have to figure it out. I am younger, but I’m not sure it’s much easier. My heart goes out to your mom, but you cannot be abused because she is hurting. You are also hurting. Would she consider seeing a therapist? I think it would help so much or maybe your church has a grief group she could join. I’m thinking of starting one at my church. Blessings to you all, Susan
Charlotte – You are an awesome fighter and your attitude will take you very far. Positive attitude, don’t give in, rest when you need to and let your husband do all the cooking and pamper you. Thanks for the update and I look forward to more. Blessings, Susan
Dear Debora, We would all like to assure you that your grandma will be ok, but unfortunately, no one can predict that and this is an awful cancer and usually diagnosed late, but it sounds like you are going to have the camera which will give them a better idea of the state of the cancer. Chemo is a standard treatment, but I must agree with the others that a major cancer treatment center is best. If she might be a candidate for resection, that would be awesome. It is a difficult time for you and your grandma, so please come here often and give us updates, share your thoughts and feelings and let us be whatever support we can for you. We have been where you are (in one way or another) and we really care and understand. Blessings, Susan
