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Yes, Lainy is all that has been shared (in my experience). I have appreciated you so much and all your encouragement and open sharing. You have been a great example to me and I appreciate you so much. Thanks to this board I feel I have another family there to support me and get me through. Thanks to Lainy, Marion, Gavin, and so many others. Blessings, Susan
What a wonderful celebration of a life appreciated. I am so glad that your family had this time to honor the dad you loved so much. Blessings to you and yours, Susan
My husband is on furosemide for ascites supplemented with Potassium as a replacement. He takes an over the counter stool softener every other day. Both of these seem to help. Good luck! Blessings, Susan
Thank you all for your feedback. While my husband has a 12cm tumor in one lobe of the liver and innumberable tumors of about 11.4cm in the other lobe, he does not appear to have any blockage. I don’t know how he will feel if a stent should become necessary. I will ask him about that. He gets occasional itching, but it passes. He had jaundice earlier this year, but none in the past 4 months. He does appear to be declining, however, as his nausea and vomiting increase. The weakness also is increasing. I appreciate your comments and we probably will not see the oncologist again, but will take our issues to our internal medicine doctor who has been a godsend over the past 4 months. Blessings, Susan
Briola – I have no experience with UCI for CC. I have had a specialist at USC review my husband’s records. We are looking into City of Hope in Duarte. I wish I could be more help. Good luck. Susan
We should have several of us meet next year for Thanksgiving. I’d love to meet Gavin and Lainy you are a godsend to me. Thanksgiving next year – Phoenix , AZ or Apple Valley, CA?
So glad to hear that your hubby is doing better. As hard as it is, don’t take him personally right now. He isn’t himself with all he is facing. He is so close to his cancer and mortality that he has trouble seeing beyond that. Support him as best you can and take time for you. You can vent here or to others who care about you. It has been amazing for me to find others going through what I am. I was so glad to see your post initially, because I had started to think that others weren’t facing a difficult loved one with cc. Thank you for sharing so openly and honestly. I pray for better days. Blessings, Susan
Dear Varun – These are difficult days for you, but also an opportunity to say good bye and have no regrets. Hold you mum close in spirit and in body. You have fought a good fight and you are all finishing as well as you can. I am so sorry that you have to go through this. I pray for peace and comfort for you and your family. Know we are thinking of you as you face the day. Blessings, Susan
I hate that I have been losing my husband little by little, more and more and there is no light at the end of the tunnel = only an oncoming train. I hate that my children and grandchildren will suffer the loss with me and while we are thankful for what we have had in my husband, we are sad at what we are losing. I hate that we did nothing to bring this on.
He hates leaving before we grow old together. He hates being weak, sick, in pain. He hates that he is losing bits of himself every single day.
We’ll be more positive tomorrow.
My heart goes out to you and your family. Now is the time for that peace that passes understanding. That will be my prayer for all of you. No one outside of this community can begin to understand what you are all going through. I am so sorry. We are here for you and supporting you in our hearts. Blessings, Susan
Welcome Schrums4 – You have a great community who are riding this roller coaster with you. Know that we are here for you and share your experience. Blessings, Susan
So sorry for your disappointing news on the liver function. I pray for a peaceful nights sleep for you both. Blessings, Susan
Lainy – I echo Amy’s thoughts – you are such an inspiration. I am so thankful to have you on this site. Sorry for what it took to get us here. I am praying that Teddy has had a comfortable day and you have shared some precious honeymoon moments. Blessings, Susan
Ladybug – I am so glad you posted what is going on and how hard it is. It is so hard to see them in pain and the bittersweet pain of the precious memories. We appreicate your struggle and wish for you that it could be different. Please know that we are thinking of you and your family. I pray that you all get a good night’s sleep as you know the battle awaits again tomorrow. We are on the battlefield with you. Take whatever comfort you can in knowing people care. Blessings, Susan
I know your story. My husband has been more unkind than kind. I remind myself that for over 26 years, he was not like this. The emotional and verbal abuse is a result of his illness. I am not saying that is true for everyone, but it seems to be true in our case. Once I wrote my husband a letter explaining that I loved him and was not his enemy. I would stand by him, but I missed the husband I used to have. This helped for a little while. It seems our marriage is as much a roller coaster now as his hehealth. Once I prayed and said, “God, you told me you wouldn’t give me more than I could handle. Well, I need a miracle now.” Within moments, my husband was smiling and sweet again (for awhile). I think they are very scared and hate not having control. This makes their anger more prevalent. My husband often does not remember that he has been difficult. Remember to take care of you. If you need a break, take it. Come back here often. This community is so supportive and wonderful. Vent here. It will help you when you get the feelings out of your body. Blessings, Susan
