srengle
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I am so sorry to say that I lost my husband to CC on October 10. We were told on the 5th that the chemo was not working and that the cancer had grown significantly (following a CT scan on the 4th). My Steve was alert and talking on the 9th, but was fading quickly. He was able to talk to the pastor and make arrangements. He went peacefully the next day with his family at his side. After a 10 month battle, it is over. What a devistating disease. I don’t know what we could have done differently outside of a transplant, which the oncologist said was out of the question (although I don’t know why). He will be terribly missed.
I’m back to finally answer some questions. Steve’s CC is intrahepatic. the thrombosis is complete. I don’t know what to expect from the thrombosis on top of the CC, but the Oncologist doesn’t seem to be too concerned about the thrombosis. Steve is really feeling pretty well. We will talk to Onc today about a new development, he has two hernias that has trippled in size over the past month or two. It always seems to be something! One step forward, one step back.
I too would recommend the “Anti-Cancer Book” by David Servan-Schreiber. He really gets into nutrition. Your sister needs fruits in her diet, but not processed sugars (white and brown sugar). I use Agave and Stevia on my husband’s cereal and in his tea. I have also heard that vegetables should be cooked! I really don’t know exactly why, maybe due to the difficulty of digesting a raw diet or due to toxins?? You were right that berries are particularly important in fighting cancer. What is specific to CC? I don’t know, but I have had my husband on a low glycemic-index diet with as much organic foods as possible. He seems to be responding well, I pray!
Hi JBC44. It sounds as though you and I are in about the same place. My husband was diagnosed right around the new year, also stage 4. He’s received 3 rounds of chemo, but he gets Gemzar each time and Cisplatin once per round. As you said, some days are pretty good, others are really LOW. I am afraid that I can’t help with the insurance question. Luckily, I just retired and have Steve on my insurance, plus he gets insurance through his work. I was shocked to find out that one day of chemo (both Cisplatin and Gemzar) runs $5800! We have not received any bills yet. I only pray that between the two insurances, our part will be significantly reduced. I just want you to know that I am thinking about you and your husband. This really stinks, doesn’t it? Who’d have thought we’d have to be visiting at a website like this. Still, the support is encouraging! Is there a church or other civic group in your city that might be willing to help out?
Wow! Thanks everyone! What quick responses! I truly appreciate that. Marion, the burps are not hiccups. He had those early on with the chemo. These are definitely dry heaves, but he burps up air with them. It is really weird unless you witness it. We will definitely discuss it with the Onc tomorrow. They keep changing his nausea meds, but that doesn’t help b/c he really isn’t nauseated. It happens at different times of day from immediately upon waking to after a meal. Often as he is walking to the car after being at work for a few hours. Good thing I drive!
Thanks for the advice! I love this site, but hate to be here! Stil, I read so many positive posts! Now I don’t feel that we are quite so doomed or alone!
