ssteiners
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Yes, I had hoped for that. However, recently I had no job b/c I was fired when boss learned of my cancer dx , I owned my own car which was considered property and that was an asset, so it was denied. Sherry
Thanks Pam. My platelets are checked every 2 weeks. They have risen from 50,000 to 87,000 thanks to Chinese Herbs and faith. I hope your daughter is doing better. Where does she get her treatment?
Joe, thanks for your story. Faith is a strong component in this journey. I was given similar prognosis and am still kicking butt. It is a very frustrating roller coaster. I am most discouraged by the insensitivity of my insurance company as they restrict coverage to the local area. No specialists here. My platelets have been too low for 12 weeks and the docs are content to wait it out. Without my faith in God, I couldn’t handle this. But I am looking at other centers and trying to find out if any have special rates for people without proper insurance coverage. In the past 8 months I’ve lost my job, got medical bills out the ying yang and can’t pay my mortgage. But I have courage and faith. Best to you my friend. Sherry
Thanks for your responses. I am trying to get appt with Johns Hopkins for 2nd opinion. It’s been frustrating over past 12 weeks not having chemo and doc wants to wait until platelets come up (thinks spleen is eating them.) or wants to wait for disease progression! As of 3 weeks ago AFS was 13, CA19-9 was 28 and CEA was 3.6. I have huge tumors in both lobes and little lesions all around. No evidence of lymph node uptake. No co morbidity. Any advise is appreciated. Looking forward to sharing and receiving info.
