susans

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  • in reply to: New Member looking for advice #69149
    susans
    Member

    Hey-
    Sorry to be so slow to respond- I just saw your post. We are from Virginia but were referred to Duke when first diagnosed. My husband sees oncologist Herbert Hurwitz at Duke. He also began a trial at Lineberger Cancer Hospital at UNC. He sees Dr. Autumn McCree at UNC. I also believe Dr. Morris at Duke has treated many CC patients. Hope all goes well!
    Susan

    in reply to: Question of Heredity #69704
    susans
    Member

    Hi Stamatina-
    My husband has CC. His father died of liver disease- but it was when my husband was 10. So he doesn’t actually know what kind of disease, as it was 45 years ago.
    Susan

    in reply to: Scan showed improvement #65144
    susans
    Member

    Hi Cathy-
    The Gem/Cis did not work for my husband. As he cannot have any additional radiation, he had Bland embolization (twice). This is similar to Willow’s sister, except the spheres are plain glass and work by blocking the blood supply. He waited 6 months to have a scan. Although his mets in the liver grew slightly, it wasn’t much. And he looked great/felt decent during the 6 months.

    He is now in a clinical trial at the Lineberger Clinic at UNC Chapel Hill, NC. The clinical trial is FOLFOX6 + an oral experimental drug called BKM120. He has a scan Friday to find out if it is working. I will definitely let everyone know if he has a good report. I believe this drug is being tested in many trials around the country.

    Good luck to you and your sister!

    Susan

    in reply to: Treatment Centers/Physicians #29977
    susans
    Member

    My husband was diagnosed in March 2011. His liver was resected at Duke by Dr, Bryan Clary. His Oncologist at Duke is Dr. Herbert Hurwitz. The Radiologist is Dr. Brian Czito. The Interventional Radiologist is Dr, Suhocki. All at Duke have been very caring. He has received excellent care. Our local Oncologist in Norfolk Virginia is Dr. Thomas Alberico– who is wonderful!
    Susan

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