teammarjen-jenny
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teammarjen-jennyMember
Kandre-
Many prayers and postitive thoughts for you at this time. I am sorry for your loss.
Hugs,
Jennyteammarjen-jennyMemberGood luck Cindy! Prayers from South Dakota!
teammarjen-jennyMemberThanks everyone for the comments and welcome! I will look around at some of the posts and get involved.
Marr had an amazingly good day today, nearly normal activity, so we take this blessing.
May 8, 2012 at 10:47 pm in reply to: Predictors of dropout and Recurrence inCCA Liver Transplant from Mayo #57737teammarjen-jennyMemberHello there,
I am very interested in reading the entire article from the Mayo group (our doctors, actually). I went to the link, but could only get the abstract. Do you have a PDF of the whole article? Just checking.
thanks!
Jennyteammarjen-jennyMemberThanks for the comments and nice welcome, Gavin. Looking forward to hear stories from others like yourself on this site. Time to get searching around!
Jenny
teammarjen-jennyMemberI was just at Disney with my husband (has CC), our 5 yo son and some of my husbands relatives… they were so peeved with me because i was 20 minutes late coming down to leave in the morning because it was slowing down their data at Disney. that’s what they have to worry about…whether or not they’ll ride the teacups this trip to Disney or one next year (they live in FL). they made my husband feel like they didn’t care, didn’t wait up for us to go on rides… and I honestly think it is because my huband ‘looks’ pretty good. He’s also lost weight that was needin’ some losin’ and with pain management can get through the day OK most of the time. that’s what they see.
What I see is a tired, in pain, worn out man who pushes himself to be the best he can be for his wife and boy, so the family and friends don’t get uncomfortable or freaked out about the cancer thing, and pushes to get as much out of life as possible.
I’ve been pretty spun up about how they treated him/us on our day(s) togehter. Do people really not get how serious, life-threatening and life altering this is??! that’s what frustrates me.
i feel your pain. Some people just don’t get it.
Jenny
teammarjen-jennyMemberHello curt! I am also a new member and although I was not happy to hear your story, or that our paths crossed here, I am hopeful that sharing our stories will be a strength and source of positive energy. Good luck to your Mom- I will say a prayer for her. -Jenny
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