willow
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Thank you for sharing your story, triple blessed! I am searching for hope for my sister who also has ICC and a young child. I need to look up what exactly chemoradiation is. Best to you and thank you again!
WillowThat’s lovely, Lainey.
Lovedad, I am really sorry for the loss of your father. You have been a wonderful daughter to him. My sincere condolences. Willow
Suz,
You are not alone in your feelings. It is such an awful thing to watch a loved one go through. I am very happy that your sister is stable now with “maintenance chemo”!!This trial sounds really promising! I love that its using your own natural defenses against this cancer. My Mom has bladder cancer which is in remission after a different type of immunotherapy treatment. I am so happy for you that you’re better than stable after 7 months with no treatments! Wow!!
My sister had gem Cis and had few side effects in the beginning except constipation (probably from anti nausea meds). Hydrate and eat well. She did have a little fatigue too and her hair thinned a bit but she never lost enough for anyone rlse to notice. her Biggest issue was low white blood cell counts after only 1 chemo. Then, with Neulasta shots, that came back up but then platelet counts were often too low for chemo to be allowed. Not getting to have treatment is a disappointment, but we just moved on and looked forward to the next chance 2 weeks later. They adjust for these common problems by either spreading out treatments or lowering dose or changing chemo drugs in addition to giving the blood cell booster shots 24 hours after chemo tx. The fatigue was probably partially from the low blood cell numbers. The chemo day/infusionitself was not bad, she ssid. She would just really relax (the ativan helps) and she had the attitude of feeling thankful for the treatments. Now she is having a different type of tx (radioembolization ) and may resume chemo later.
That is inspiring to know he has been able to get through the tough chemo with few side effects. Glad he is stable and hope more rounds of this drug will begin to shrink the liver tumors. You husband sounds amazing !
Bluebird,
I would like to give my condolences on the loss of your dear husband Jack. I am especially sorry for your son. You sound like you have taken some healthy measures to help him cope. It’s wonderful that you went away together to add some lightness and distraction. Take care.
Sincerely, WillowBluebird,
I would like to give my condolences on the loss of your dear husband Jack. I am especially sorry for your son. You sound like you have taken some healthy measures to help him cope. It’s wonderful that you went away together to add some lightness and distraction.
Sincerely, WillowWisdom,
I agree with Lainey. Perhaps you need a new Dr. Have you tried Stanford? You are not alone. Garner all the support you can and allow yourself to have the emotions. It must be difficult to keep your “good face” on at work all the time, but I do understand why you are staying private. My sister (with ICC) felt the same way though she did take a medical leave, she didn’t tell them why. Anyhow, know you are not alone and there are treatments still available to you.
Willow
