wmil

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  • February 25, 2015 at 9:00 pm in reply to: New member Wendy from Holland #85265
    wmil
    Spectator

    Thank you very much Gavin for your response and all the information! I am so happy I can talk to you on this board.

    I don’t think there is any chemo therapy left for me to try. The 5FU treatment was already a second line therapy. I am therefore trying to gather information and to join a relevant clinical trial based on gene, targeted or immune therapy. The offer seems scarce here in the Netherlands.

    I am also particularly interested in the upcoming trials in Scotland, based on the succesful WnT pathways trials on animals, as published last week? Do you know what medicines have been tested?

    I recently heard of the AMMF in the UK. I will definitely have a closer look on this site!

    Thank you very much for checking if Prof Juan Valle will be able to see me & for all your moral support…

    February 25, 2015 at 4:23 pm in reply to: New member Wendy from Holland #85262
    wmil
    Spectator

    Thank you so very much!

    February 25, 2015 at 4:14 pm in reply to: New member Wendy from Holland #85260
    wmil
    Spectator

    Thank you very much Lainy. I would go anywhere for another opinion! Fly me to the moon ;-) But where should I go in the UK? Where to start?

    Thank you very much for your best wishes and prayers, I can really use them now…

    February 25, 2015 at 1:59 pm in reply to: New member Wendy from Holland #85258
    wmil
    Spectator

    Hi!

    I just wanted to give you an update. Don’t know if this is the right place for it.
    Unfortunately the 5FU didn’t work, actually it back fired. All tumors have grown significantly, leaving me with (tumor) fever and abdominal pains. An antibiotic treatment has helped to get rid of the fever, but the pain is still there.

    I am desperately seeking for other options and discussing clinical trials with several doctors here in the Netherlands. However it feels like a huge struggle. Doctors are reserved about there own clinical trials! I feel that I am not only fighting cancer, but I am also fighting its statistics. It feels like they have already given up on me.

    All tips & tricks to deal with and overcome this are welcome!

    Regards,
    Wendy

    November 17, 2014 at 8:09 pm in reply to: New member Wendy from Holland #85256
    wmil
    Spectator

    Thank you very much for this warm welcome! I have started with the 5FU treatment last week. Apart from some nausea I feel fine, so far so good. In the meantime I am looking for other options. I have found some new leads, hopefully they will bring me new information or new treatment opportunities. I will keep you posted!

    Warm regards,
    Wendy

    @ Moontje: I would love to have the details about Belgium!

    October 29, 2014 at 11:05 am in reply to: Update on NIH Trial #78747
    wmil
    Spectator

    Dear Melinda,

    I have watched the webinar last week in which your doctors and yourself explained in detail what the Tcell trial is all about. What a wonderful breakthrough and hopeful results! Thank you very much for sharing.

    Unfortunately the trial is not (yet) available in Europe (the Netherlands). But case studies like this do give hope and inspiration. My situation is similar to yours and I am desperately seeking for new options. I will definitely discuss this (future) option here overseas.

    I wish you all the best!

    With love,
    from Holland

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