Good and Bad news
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- This topic has 15 replies, 8 voices, and was last updated 12 years, 5 months ago by pamela.
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June 2, 2012 at 11:54 am #61517pamelaSpectator
All I can say is I love you, Kris and whatever you decide to do, I will support you 100%. You are such an awesome person and don’t deserve any of this. I am so sorry and wish for everything good for you. Take care.
Love, -Pam
June 2, 2012 at 3:04 am #61516lainySpectatorKris, I am at a loss for words. Wish I had something really smart to tell you. All I can do is cheer for you and think about sending all good vibes to you. I will again use Teddy’s phrase, “now we know what is there, now let’s fix it”. You will make the right decision, this sounds stupid but don’t try so hard. See if it comes to you. Wait! When my kids had a decision they couldn’t make I would tell them to write down all the pros and cons of the question. Then see which side out weighs the other. It always worked. I have also told them that just when things look bleakest, something turns everything around. They said I was right. Glad I was right about something!
At this point I have to make a funny, you know. You mentioned getting your affairs in order??? I thought you wern’t having any!
OK, so try to relax your mind, look at all sides and Kris will not let Kris down!You never know how strong you are until “strong” is the only choice you have!
Tough times never last, tough people do!
I love you!June 2, 2012 at 2:52 am #61515kris00jSpectatorI’m now an official drug addict. Got scripts for Paxil and Xanax. Of course, they are BOTH hard on the liver…. go figure.
Sometime next week I get to talk to someone about radiation. I want to go to Fox Chase Cancer Center because they are so close to me. I hope Aetna will cover it. I guess I should call on Monday to see.
In a nutshell: Dr. Fong says the group of nodes (known as 1 node) is too large to do anything with. It is where my intestines or colon and my pancreas and my duodenum and my GOOD bile ducts all meet. It has kind of worked itself around them. Probably stuck to some or all of them. He says surgery would not be a very good option. If necessary he would try it, but he wouldn’t hold out much hope for success. He would have to oblate much of the cells and might do more harm than good.
1st choice: clinical trials. I could be a guinea pig with no guarantee of success.
2nd option: a surgery that Dr. Fong says would probably do more harm than good.
3rd option: 5 weeks of radiation. He says he would give it at least a 60% chance of success. He said he would tell anyone in my shoes to go this route. And imagine him a surgeon!
What really scared me was he walked in and said he hadn’t expected me to look healthy. What? I think he was expecting a jaundiced sick person. He says the node is getting really close to my good bile ducts.
He also said if I had looked like he expected me to look (sick) he might not have given me much hope, just told me to get ready. So I think I’m going to take the small hint and make sure my affairs are in order. Not that I have that many to get in order, but I HAVE been putting it off.
Not that I expect to die. Hey!! I’m still one of the healthy ones! But this node is scary big! And Xeloda did nothing but help it grow, it seems. I asked why oxaliplatin worked on both nodes and tumor, and the Xeloda just shrunk the tumor. He said that many times when the cancer lands somewhere else it mutates to another form of cc. So when Dr. Kemeny comes back on Tues. I will also ask her what she thinks: radiation or cisplatin? I can’t take the oxy because of my neuropathy, but maybe cisplatin? Or a lower dose of oxy for a few sessions? Or should I go with radiation????? Should I flip a coin??? (joke)
I am so confused, depressed and lost right now. So I had to get “happy pills”. I don’t know what to do. I just wish I knew which way to go.
I have asked God to help me thru this and let me know what he wants from me. I haven’t heard clearly enough. Tonight I’m going to ask him to hit me over the head with what he wants from me…June 1, 2012 at 6:19 pm #61514gavinModeratorThinking of you Kris and sending loads of positive thoughts to you as well.
Hugs,
Gavin
June 1, 2012 at 4:45 pm #61513mustangmortSpectatorHang in there, Kris.
June 1, 2012 at 5:45 am #61512marionsModeratorKris…too many good vibes aroun you. The news has to be good.
Huuuuuuuuuuuugs,
MarionJune 1, 2012 at 5:39 am #61511nancy246SpectatorKris, Sending postive thoughts for a good meeting with Dr. Fong! Hugs. Nancy
June 1, 2012 at 4:34 am #61510lainySpectatorKris, I will be there in spirit with you tomorrow. Like Teddy used to say, “It is what it is, now let’s take care of it”. Hopefully, I agree, that the other DOC screwed up and you get your good news.
June 1, 2012 at 3:51 am #61509kris00jSpectatorI know I have to wait to talk to Dr. Fong. You never know how different his sentences are from hers!! So I was all depressed by how she said what she said. And I know I have to wait to hear what HE says.
That and get a script for Zoloft. Can’t handle life alone right now. I want some happy pills.
I am SO hoping she really messed up his message (wouldn’t be the first time) and he wants to try getting everything out. Not sure why he would have trouble removing the lymph node since the one I think they were talking about is basically surrounded by my dying left lobe??
I dunno. Can’t guess anymore. It just drives me crazy. So sleeping pill has been taken. A friend insisted she go with me. Mom will be happy.
I hope to post at least “Fairly good news” tomorrow!!!!! Please God???June 1, 2012 at 12:18 am #61508pamelaSpectatorSorry you didn’t get to hear what you wanted, Kris. But Lauren and I both have good feelings that things will go well for you. Just be patient. Your “Good News” time will come. Take care.
Love, -Pam
May 31, 2012 at 9:08 pm #61507edhMemberKris, I know it’s frustrating and we were so hoping for really great news for you as well. I am thankful that there is good news. We continue to stand and encourage you. You are a tremendous inspiration to all. Be encouraged, continue to fight and most importantly, KEEP HOPE ALIVE. It is the driving force to your and our healing.
Refuse to be discouraged!
EDHMay 30, 2012 at 7:02 pm #61506marionsModeratorKris…if not a resection now then there always is later; little steps will get you there also. I know that you are disappointed, but the news could have been far more worse than it is. I am holding on to the good in that you have treatment options available to you.
Positive thoughts and hugs are heading your way.
MarionMay 30, 2012 at 6:57 pm #61505lainySpectatorSo, Kris, it is a good news/bad news day but I prefer to think of it as a good news, not so good news day. Guess I always feel if more options are still available, it is not bad news. I understand your frustration and it just seems CC has a mind of it’s own.
Hang in there, just 2 days and you get to meet with the “Fong”.May 30, 2012 at 6:21 pm #61504kris00jSpectatorFriday. I don’t know the time yet. But in Dr. Kemeny’s words “if he can’t get the lymph nodes he’ll mark me for radiation”. He might not even do the resection right now… It’s so frustrating!!
And I really thought I was gonna get to post in good news again!May 30, 2012 at 6:15 pm #61503marionsModeratorKris…I share your frustration, but am pleased to read that things have remained relatively stable and improved (other than the lymph node issue.) This cancer is known to be resilient, but so are you. Hold on to your boxing gloves – the fight continues. When is your appointment with Dr. Fong?
Hugs,
Marion -
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