Dad…
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Healthy baby boy!!! 4 pounds, 5 ounces… pretty good for 6 weeks early. He will be in ICU for a few days to watch for infection (meconium was present in fluid), but they are both doing great. God sure works in mysterious ways
We will have the proud Daddy tell my Dad tomorrow – rather then make it news that will scare and aggitate him, we will make it something to celebrate. Can’t wait to meet my nephew… our little miracle during a time of adversity.Jen
Must be quick, I am at the hospital. They figured out the pain – massive infection in the gallbladder, and fluid (infection) behind the gallbladder and into the abdominal wall. Sounds like they are willing to do surgery, may be tonight, may be tomorrow. WE don’t know what the outcome will be, but I am trying to be hopeful. He is so drugged up that he is finally comfortable, so I am happy and thankful for that.
My sister (due Jan 12) just went in for an emergency c-section – we haven’t told Dad, we’ll wait until we hear GOOD news (I refuse to believe it will be bad)! No idea what happened, but stress does a lot to a body. God may have played a little part – Dad will now have the chance to meet his Grandson, and possibly (hopefully) spend Christmas with him. Just waiting for the phone call to hear that my beautiful nephew is here, and healthy.
Love to you all.
Jen
Jen I am so sorry to hear that your Dad is in so much pain. It is so hard to watch this and feel so helpless. I hope that they can find something to ease the pain. My thoughts and prayers are with you and your family.
Sharon
Jen, I pray that they can get the pain under control. I am so sorry that your family has to go through this, especially your poor dad.
Dear Jen, I am feeling so bad for your dad and all of you. The Fentenyl is working beautifully for Teddy, we are lucky. Honestly we are at the point where it would be a blessing for our loved ones to take flight. This is not living and it’s hardly existing. If Teddy gets to the point where he is really not here and in deep pain I am ready to tell him its OK to go. Sometimes they wait for permission from loved ones. It is also a time frame that seems to take forever. I am praying that Dad maybe just has an infection or something like that, that can be helped. Boy, we do ramble when we can’t say what we really feel! Prayers and thoughts going out to you and yours. That says it all.
Dearest Jen
I don’t know what to say, i pray that they will find a way to manage your Dad’s pain, and i ask for strength and serenity to come your way.
Lots of love
Michelle
Dear Jen,
My heart is breaking for you reading your post. Please try and keep positive, your Dad is in the right place now to get to the bottom to what is causing the pain. I really don’t think the Doctors would be mentioning your Dad coming home if they didn’t think it was possible.
Will be thinking and praying for you and your family today.
Stay strong.
Love and hugs
Andrea xx
Things are so very very awful. Went to see Dad last night and he was in a lot of pain – even taking the maximum amount of meds he was allowed (which is way more then ever before), he could not get up or move at all without yelping in pain. I left the house very sad, hoping that they would give him something better at his appointment today, and knowing that the nurses would be coming in tomorrow to help control it.
I got a call on my way to work this morning from Mom saying that I needed to meet them at the hospital. They had to call 911 last night when Dad’s pain got so bad that he was saying he wanted to just die… to hear that from a man who has never said his pain was near a 10 before is heartbreaking. The ambulance came and they gave Dad fentynol(sp) which helped for an hour and a half, and the pain came back. It was a long night for my poor Mom too.
He went in today, and after he couldn’t get out of the wheel chair without all of us helping, and screaming in pain the entire time, it was decided that he needed to be admitted to the palliative unit for pain control. He’s had an absolutely ridiculous amount of fentynol, as well as oxycontin and oxycodone, he is still “beyond a 10”, and just wants it all to end. No food or drink (basically) for 2 days. They can’t figure out what’s wrong, since his scan from a week ago doesn’t show much change. He’s being treated for an infection (not sure what – need to talk to the doctor), and they are wondering if he has organ failure that started within the last week… more tests and another CT tomorrow… not looking forward to having to move him from his bed again… the thought makes me want to cry.
Right now, I just want him out of pain. I don’t care what it takes, the pain is just too unfair. I hope for a better day tomorrow. They are still saying “when he gets home in a few days”, but at the moment, that seems like an impossibility. Maybe once they figure things out and get it under control it will change, but right now I don’t see it.
Dad may be the first at the table, holding spots for your loved ones… it’s a sad thought for me, but it’s better then the life he is living right now, because it’s not much of a life at all.
Thinking and praying for you all… feeling so lucky to have you.
Hi Jen,
Thinking of your today, hope you manage to get your Dads pain relief under control.
I too am so glad we have got each other, Lainy and the wonderful people on this site.
Sending love and hugs
Andrea x
Jen,
I am sorry to hear this. I so hope that the new pain meds will start to work rapidly for your dad and that he can get some relief with that. Like Lainy and Andie, I so hope that your dad changes his mind about letting the nurses come in as I think that they will be a big help to you all. And I also think that hospital bed will allow for him to be more comfortable as well. Whne my dad was in the hospice, he thought that the bed was very comfy and he liked it a lot, siad it was a lot more comfortable than his own bed.
Thinking of you and your family right now.
Hugs,
Gavin
Jen, you said it all and you said it well. My hands are touching yours and Andie’s.
We shall call them the 3 Musketeers! Brave, good fighters, romantics and the best of the best!His appointment has been changed to tomorrow with the oncologist, and the nurse is coming on Wednesday. Mom is going to talk to her about getting Dad a hospital bed for the living room, which I think is a wonderful idea. He still likes sleeping in his bed at night, with Mom, but he’s on the couch ALL day and I think the bed would prove to be far more comfortable for him. My Mom also took a leave, so today is her last day at work, which I’m glad for… they need to be with each other. She is so sad – we knew this was coming, but didn’t expect it to be so sudden.
Seeing him in pain is awful – I hope your Dad continues to be comfortable – this cancer hits everyone differently, so I pray he’ll be one of the lucky ones in that way! We will do everything in the world to ensure Dad is comfortable, so hopefully the doctor will give him something stronger tomorrow.
Thinking of you both Lainy and Andrea — we are all on the same path right now, and I’m glad to have you both walking by my side, even if I’m sad we all have to be here.
Jen
Dear Jen,
So sorry to read this, I hope your Dad agrees to let the nurses come to visit, not only for your Dad but also your Mom. My Dad has finally agreed to let the Macmillan nurses come in, at the moment he’s in no pain but they need the emotional support.
I can’t imagine how heartbreaking it must be to see your Dad in pain, this is what is worrying me the most. Could you phone and get the appointment brought forward?
Stay strong, sending big hugs and love your way
Andrea x
Oh, Jen, I can so feel for you all. I hope Dad lets the Nurses come in and I am thinking he may need a different pain medicine. Teddy is on 200mg of Morphine twice a day with 50mg breakthrough every hour or as needed. He also had the pain as his biggest fear but that fear is gone now. Teddy also never wants to go to the hospital. By the way T has been on Oxygen, when he wants it, for a month now and he says it also helps the pain a little and makes him feel better. Since T is on so much Morphine I insist he walk with the walker. That’s all we need is a fall and a break! Just sending some ideas your way. My heart is so very heavy for us all! Hang strong, Jen.
Dad’s pain has increase dramatically the last week. It’s breaking my heart, to be honest. They have increased his pain meds (from 50mg of oxycodone twice a day to 90mg twice a day), and he can still take his oxycontin as required, which is quite often. Someone has to be with him now since with all the meds his respiration could slow down too much. Mom has been working up to this point, but I think she’s going to be taking a leave to spend all her time with Dad. I don’t think I’ll be far behind. My sister is there during the day, since she’s off on early leave with her pregnancy.
He’s still at home (he refuses to go to the hospital, even with the pain – he is terrified they will keep him there), but I think he’ll FINALLY start allowing the nurses to come in and check on him. He’s still able to get up and around on his own, but I haven’t seen him in a few days so I’m not sure how well he’s getting around. I know he’s waking up crying and/or screaming in pain wanting something quite frequently. I think Mom will have to start getting him up more often to take something before the pain really hits the way it has been.
My poor Mom – she’s been quite stoic up until this point, but I can just hear the fear and sadness in her voice. It’s so hard. I know he has an appointment coming up, and I hope they change his meds if necessary. We’ve promised him that we will keep him comfortable until the end… he’s terrified of the pain, and I hate that his meds aren’t helping 100%. Our goal is still for him to meet his Grandson in January – we just hope he can hold out (comfortably) until then…. I guess we’ll see.
Thinking and praying for you all….
Jen
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