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good and bad (mostly good)

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Viewing 15 posts - 1 through 15 (of 33 total)
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  • #79675
    wallsm1
    Member

    Glad you are home and cancer free!! Sorry to hear you had to go through so much.

    take care,

    Susie

    #79674
    darla
    Participant

    Wow Derin, you have been through a lot, but bottom line is you are good now. Glad to hear that. Keep the good news coming.

    Hugs,
    Darla

    #79673
    lainy
    Member

    Yikes, Derin I couldn’t wait to get to the ending to make sure you are OK and you are better than OK. Thank God for French tubes and French fries! Keep it going my friend. Good to see you though.

    #79672

    OK, I ended up being in the hospital until the 12th of March, something like 23 out of 26 days. But, I’m good now! I had a multitude of angioplasty type procedures, the last one having a 16 French tube installed. Biggest one they have. They couldn’t just pull the tube out (too big) so every 2 weeks I went in for a drain tube downsizing. When the 16 French was in, it wasn’t thru the scar tissue, so everything was flowing normally. They reduced to 14 French, it passed thru the scar tissue, no issues, 12 French passed thru but ended up with a slight infection, was growing different germs than what my antibiotics killed, switched antibiotics and attached an external drain. 2 weeks later, went in for another downsizing to a 10 French which didn’t pass thru the scar tissue and was called a ‘capping trial’ since there wasn’t an external bag either. I did bloodwork, but my liver enzymes were up, so in for another tube downsizing to an 8 French (smallest one they make for biliary drains). Doc thought the 10 French tube was affecting the liver function, and ultimately it was. I did bloodwork Tuesday after the procedure (which was on Thursday the week before) and my liver functions were down but not quite in the normal range. Waited until Friday (this would be last Friday) to do bloodwork, results Monday came back normal, so I ran as fast as I could to the hospital where Dr. Perrin (interventional radiologist at Sarasota Memorial) pulled that freaking tube out of me!!! So… now I just have a bandage over the ‘hole’ that is healing. I do have some serious irritation due to all of the medical tape I was using but I’m wiping the area with prep wipes to reduce irritation. It isn’t draining any more (when he first took the tube out, bile practically shot out of my abdomen!) which is a good sign, I think Monday I can start the exercise process again!

    Anyway, there’s the long and short of it. Oh yeah, at Sloan they did do bile duct scrapings and everything came back negative so there is no recurrence at all. If this issue happens again, which they told me prior to the surgery that it could, I can deal with it no problem! The alternative is way worse for sure!

    #79644
    gavin
    Moderator

    Hi Derin,

    Sorry to hear about your longer stay in the hospital, grrr to hospitals! Know how you feel about them having made over at least a hundred trips to our local in the last 5 years with my mum and dad. Hope things get sorted and loads of positive thoughts coming your way.

    My best wishes to you,

    Gavin

    #79645
    lisacraine
    Participant

    Hoping things stay calm for you. Sending good thoughts.
    Lisa

    #79646
    kvolland
    Member

    Derin –
    I know how you feel about the hospital. We did thirty-five days between June and September. I think we should get a punch card and when you get so many stays in the hospital, you get a free week somewhere else…..like a resort with sun, sand and NO Needles.
    My husband had three rounds of sepsis after his surgery and they never really did figure out why. They thought scar tissue and narrowing of the new bile ducts but they never did say for sure. Hate that.

    Good Luck at staying out of the hospital.

    KrisV

    #79671
    kris00j
    Member

    Derin,
    Sorry you landed back in the hospital. Ugh! Unknown and out of control fevers stink! I’m glad it sounds like you’re back… Hopefully you can get out of and stay out of the hospital for quite some time! You have a great attitude, and that helps.

    #79670
    lainy
    Member

    Derin sound like you are on the tight track now. Negative biopsy sounds great to me. Sounds like you caught the big one and without fishing! When Teddy would get those nasties they put him right on a Levequin IV and that took care of that. But glad you are feeling better. Isn’t it something? You could go to a 2 week resort, be pampered to the inth degree and pay less and enjoy it. Say, that’s an idea!

    #79669
    darla
    Participant

    Derin,

    Sounds like you have been on quite a ride for the past few weeks. Hoping things settle down and you will be home for good soon.

    Love & Hugs,
    Darla

    #79668
    willow
    Member

    Derin,
    It is Very understandable that you’re sick of being in the hospital! Really glad things are progressing in the right direction for you. Hoping for no more fevers or complications. Hang in there!
    Willow

    #79667

    Well, procedure did OK, but I blew 4 Fevers over 5 days just a shakin’ and a bakin’… no fun. On 2/24 they exchanged the 10 French drain to a 12 French and plugged it the next day to drain internally. I was discharged 2/26 and flew home 2/28. 3/1 went to Sarasota Memorial with a fever. IV antibiotics and believe it or not they let me go home… hour later and one ambulance ride, I checked back in with a high fever. IV antibiotics, blood cultures, bile cultures, haven’t had a fever since late Saturday. Monday they replaced my drain and did 1of 3 angioplasty procedures. Put in a 14 French tube, a bit larger. Haven’t had any leaking since Monday (other drain was leaking like a sieve) and may get out of here tomorrow… definitely sick of hospitals… been in one 14 of the past 16 days… but hey, beats the alternative, doesn’t it?? Negative biopsy is the best result, I can deal with the scar tissue…

    #79666
    wallsm1
    Member

    Derin,

    Glad to hear it went well. I think strictures can be pretty common. You had radiation, right? That was one of my biggest concerns with radiation.
    Glad to hear you are still cancer free. Take care!

    Susie

    #79665
    gavin
    Moderator

    Glad to hear that it went well Derin, hope it doesn’t get too sore and that you make a speedy recovery as well. Rest sounds like a plan for you!

    #79664
    lisacraine
    Participant

    Glad things went well. Rest!!!!
    Lisa

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