has anyone been treated at John Hopkins Hospital

Discussion Board Forums Hospitals & Physicians has anyone been treated at John Hopkins Hospital

Viewing 6 posts - 1 through 6 (of 6 total)
  • Author
    Posts
  • #96182
    gavin
    Moderator

    Hi Joy,

    Have just seen your thread, apologies! Have you had a look at this thread here as that should have some info for you –

    Treatment Centers/Physicians

    Also, the search forum function at the side of the page will help throw up any relevant discussions about Johns Hopkins as well.

    Hope some of that is useful to you and hope that all goes well at Johns Hopkins too.

    Gavin

    #96174
    michael
    Participant

    By the way, best of luck and welcome to the forum and I hope my story is helpful in someway.

    #96173
    michael
    Participant

    I maybe a little late. Johns Hopkins is considered one of the leaders in liver cancer. That’s why we tried it for my mother. Here’s my experience…

    We had been using a really great team at Lankenau (it’s just outside Philly). 4 years ago preformed her first resection (nearly 40% of her liver) as well as an ablation. When it came back a 3rd time and Lankenau wanted to do another biopsy, we decided to get another opinion. At Johns Hopkins, we met a Dr. Weiss. He was very confident that the cancer had come back and recommended skipping the biopsy and performing surgery. So we did it. The surgery went really well and it was the cancer. Her recovery in the ICU was as smooth as we’ve ever had (she’s had 3 surgeries to date). HOWEVER… She had a leak. The wound wasn’t healing on the inside. A bile duct could not close up due to how much was leaking out. She changed her bandages daily. We even saw several “clips” come out of her. We were told that these things happen and basically that nature would have to take its course and her body would heal. We live in NJ and took numerous trips down there at the request of Weiss, but nothing was done other than “monitoring” the situation. After my father (and a nurse who came 3 days a week) had to clean the wound daily, we decided to head back to Lankenau. Dr. Carp (our original oncological surgeon) immediately recognized what needed to be done. He also stated that the leak could have carried on “indefinitely”. He sent us to a Dr. Etemad (also at Lankenau) for an ERCP. When we emailed Dr. Weiss about what Dr. Carp recommended, his response was “Thats a good idea, I wish I’d thought of it. But, I a big enough man to admit when I’m wrong and I was wrong”. The leak slowed and eventually stopped shortly after. Needless to say “Dr. Weiss” is a dirty word around my family. However, we have not written off the entire hospital since one doctor doesn’t represent the entire hospital. If surgery is an option and you are in the area, I can’t recommend Lankenau enough. Dr. Carp and Dr. Zeger have been absolutely fantastic! They are still fighting the good fight with my mother!

     

    #96099
    Joy727272
    Participant

    Blass,

    No nothing specific. Just more about the Over All Care of the Physicians and Hospital.

    Thank you

    #96095
    bglass
    Moderator

    Hi Joy,

    Welcome to our discussion board.

    I had my resection surgery at JH Hospital in Baltimore in 2015, with a good experience overall.  Do you have any specific concerns?

    Regards, Mary

     

    #96094
    Joy727272
    Participant

    We are going to Baltimore to John Hopkins Hospital to meet with a surgeon has anyone been treated there before?

Viewing 6 posts - 1 through 6 (of 6 total)
  • You must be logged in to reply to this topic.
©2017 - All Rights Reserved, Cholangiocarcinoma Foundation