November 30, 2017 at 11:42 am #96182gavinModerator
Have just seen your thread, apologies! Have you had a look at this thread here as that should have some info for you –
Also, the search forum function at the side of the page will help throw up any relevant discussions about Johns Hopkins as well.
Hope some of that is useful to you and hope that all goes well at Johns Hopkins too.
GavinNovember 30, 2017 at 10:50 am #96174michaelParticipant
By the way, best of luck and welcome to the forum and I hope my story is helpful in someway.November 30, 2017 at 10:46 am #96173michaelParticipant
I maybe a little late. Johns Hopkins is considered one of the leaders in liver cancer. That’s why we tried it for my mother. Here’s my experience…
We had been using a really great team at Lankenau (it’s just outside Philly). 4 years ago preformed her first resection (nearly 40% of her liver) as well as an ablation. When it came back a 3rd time and Lankenau wanted to do another biopsy, we decided to get another opinion. At Johns Hopkins, we met a Dr. Weiss. He was very confident that the cancer had come back and recommended skipping the biopsy and performing surgery. So we did it. The surgery went really well and it was the cancer. Her recovery in the ICU was as smooth as we’ve ever had (she’s had 3 surgeries to date). HOWEVER… She had a leak. The wound wasn’t healing on the inside. A bile duct could not close up due to how much was leaking out. She changed her bandages daily. We even saw several “clips” come out of her. We were told that these things happen and basically that nature would have to take its course and her body would heal. We live in NJ and took numerous trips down there at the request of Weiss, but nothing was done other than “monitoring” the situation. After my father (and a nurse who came 3 days a week) had to clean the wound daily, we decided to head back to Lankenau. Dr. Carp (our original oncological surgeon) immediately recognized what needed to be done. He also stated that the leak could have carried on “indefinitely”. He sent us to a Dr. Etemad (also at Lankenau) for an ERCP. When we emailed Dr. Weiss about what Dr. Carp recommended, his response was “Thats a good idea, I wish I’d thought of it. But, I a big enough man to admit when I’m wrong and I was wrong”. The leak slowed and eventually stopped shortly after. Needless to say “Dr. Weiss” is a dirty word around my family. However, we have not written off the entire hospital since one doctor doesn’t represent the entire hospital. If surgery is an option and you are in the area, I can’t recommend Lankenau enough. Dr. Carp and Dr. Zeger have been absolutely fantastic! They are still fighting the good fight with my mother!November 16, 2017 at 5:24 am #96099Joy727272Participant
No nothing specific. Just more about the Over All Care of the Physicians and Hospital.
Thank youNovember 15, 2017 at 1:53 pm #96095bglassModerator
Welcome to our discussion board.
I had my resection surgery at JH Hospital in Baltimore in 2015, with a good experience overall. Do you have any specific concerns?
Regards, MaryNovember 15, 2017 at 12:27 pm #96094Joy727272Participant
We are going to Baltimore to John Hopkins Hospital to meet with a surgeon has anyone been treated there before?
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