April 9, 2014 at 5:16 am #81424pfox2100Member
Percy I know we haven’t communicated personally much but you have helped me so much through my journey and your informative posts. You’re in my thoughts and many blessings to you. Hugs..
porterApril 9, 2014 at 3:00 am #81423wallsm1Participant
Thinking of you during this difficult time. I have always been thankful for all of the information you’ve provided us.
SusieApril 8, 2014 at 11:44 pm #81422lindarParticipant
My thoughts are with you Percy. I will always be grateful for all the good advice you provided during my husband’s illness and I hope you will be able to keep helping others for a very long time. Take care. LindaApril 8, 2014 at 9:13 pm #81421willowParticipant
I am so glad to hear from you. Any news from you, even if it is rough, is appreciated. So many here care about you and want to be “with” you at this time of your life. Sorry you’ve been feeling less purpose… Your purpose simply by being yourself is influential and helpful to others. We have all felt despair and helplessness at different times. Let others’ strength and love uplift and comfort you.
God Bless, WillowApril 8, 2014 at 4:55 pm #81420kris00jParticipant
Percy, you have helped so many of us through this horrible journey we all share. I for one can’t believe all the knowledge you have shared to so many of us. This board has benefitted from all the help you have given to so many.
I don’t know if that is what you meant about “purpose in life” but I hope you know how all of your wisdom has helped us. Your unwavering determination to help yourself, and us, through this journey has been invaluable.
I just wanted to let you know how I feel. Although I can’t begin to understand your feelings at present, I just wanted you to know you are loved and admired.
I pray you get some relief. I wish for there to be something soon to help. I’ve heard of the new CD45 trial but don’t know how close it is to beginning. Perhaps it is starting soon. It sounds unbelievably promising.April 8, 2014 at 2:49 pm #81419lisasParticipant
Well, as a relative newcomer and a patient, I have read so many of your informative and caring posts. You’ve given me a lot of hope that I have more time than I thought on first diagnosis and how to address all my options with my doctors. So, thank you. But having said that about hope, I’m a realist and want to be prepared for whatever, so writing about anything is okay.
I really just ditto what everyone else has said ^ regarding taking care of yourself.
LisaApril 8, 2014 at 2:44 pm #81418darlaParticipant
Your posts are always welcome here and are of much benefit to all who have come for help and support. You definitely still have a purpose in life. I totally understand what you are saying, but for me and I am sure many others here, the insight into how you are feeling and your wants & needs as a patient are very important. If you are feeling up to it, your posts are always welcome. It’s also good to hear from you even if it is just an update on how you are doing. We all care and want to be here for you as you have been for so many others.
I am so sorry for what you are going through both physically and mentally. Know that my thoughts and prayers are with you. Take care and do what is best for you.
Lots of Love & Hugs,
DarlaApril 8, 2014 at 2:36 pm #81417karenParticipant
Percy, so saddened that you feel you have lost your purpose for life. Sending you loving, healing energies to help stengthen and bolster you. This journey of life can be so overwhelming. I personally think your messages to the board are helpful, even to the newcomers. However I am not a patient, was only a caregiver, so my feelings are certainly different. We are all only here on planet Earth for a certain period of time…some extremely long and others not so much. What we gleam while here and can communicate to others I think is of utmost importance, as you have been most adept at doing. Cudos to all that you have contributed to each and every one of us.
KarenApril 8, 2014 at 1:12 pm #81416pcl1029Member
Hi, Lainy and everyone,
Thanks Lainy for your message and thanks Marion to alert me for the message.
I am fine, but I feel I lost the purpose of life.
I have pain but manageable. I spend most of my time in bed; appetite is not good but can eat solids. I really do not want to have hospice in fear of lost control of my freedom.
I do want to send messages out on this board and answer questions, but afraid it may hurt people who are newcomers and full of hope.
My conclusion about this disease and treatment is it it a long way home from cure.
As a patient, I advocate let the patient desire what he or she wants and not to interfere even you think you know a lot about this disease.
Mentally this disease is very hard on patient. 2nd opinion is good but not always helpful.
God bless all of you.April 8, 2014 at 3:28 am #9780lainyParticipant
Don’t know if you are up to looking at the site but had you on my mind. Thinking of you every day! Our thoughts and prayers are with you as we wish for comfort for you! You are one very special and very much loved Man!
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