Introduction
- This topic has 6 replies, 7 voices, and was last updated 9 years, 5 months ago by
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Dear Jim,
A warm welcome from me too. I also think a second opinion is a good idea at this point. Keep us informed as we do care and you will get a lot of help and support from all of us here. You and Kimberly have found the best place to be when dealing with this disease.
Love & Hugs,
DarlaDear Jim,
Welcome to this site….and bless you and your wife! We are all here to lend support, information and encouragement! Please don’t hesitate to ask anything here. All questions and comments are welcome! We learn from each other. Please don’t lose hope….each day is a blessing and remember you are not alone in this fight. Hugs and prayers to you and Kimberly!
MelindaJim, Welcome and sorry you had to find us. I am excited to tell you I am 5 years cancer free form this “monster”. I was considered inoperable and had 6-8 months to live, but my saving grace was being diagnosed immediately by a doctor very versed in CC and he knew right away that my only HOPE was a transplant, he immediately put me in the care of Dr. William Chapman at Barnes-Jewish Hospital in St. Louis MO. I have an amazing story to share and keep it posted at http://www.catherinedunnagan.com
My best advice to you at this time is to make sure your doctor is very versed and educated in the treatment of CC, that he/she is open to transplants as an option, and even second opinions to validate his. I have shared my story enough that several have contacted Dr. Chapman and at least 4 have had there “inoperable” diagnose changed to him being able to resect and in one case even transplant (the Mayo told him he couldn’t be transplanted), these fellow CC members all were at major cancer centers to begin. Read posting by “Daisy” and” Brenda on the farm” for second opinion stories I am alive today because Of God, 2 strangers and Dr. William Chapman and that is exactly how Dr. Chapman list it!!! Jim there are so many more positive stories and success stories than there was 6 years ago when I was diagnosed, there is HOPE!!!
Please contact me if I can help. (618-567-3247)
Lots of prayers for HOPE-CathyHi Jim,
Welcome to the site. Sorry that you had to find us all here and I am sorry to hear about your wife. But glad that you have joined as you are in the best place for support and help and will get loads of each from us all. And you are so doing the right thing in seeking as much info as you can as the better informed you are the better equipped you will be in making decisions about everything. If we can help then we will and please feel free to ask. We don’t have all the answers but will help as best as we can.
Love your wife’s attitude about removing the monster! I so hope that that will be the case! Keep coming back here Jim, we are here for you and we care.
My best wishes to you and your wife,
Gavin
Hello Jim, and welcome to the best place to be for CC support. You now have joined a family with world wide support. I say ditto on the 2nd opinion, we are big believers in that. Different eyes see things, well, differently. Plus it will ease your mind to have the back up. The ONCs don’t mind at all and even expect it with this. I had to chuckle as I like calling CC a ‘monster’ as well. Please keep us updated on Kimberly’s progress as we truly care. Below are some sites you may find helpful:
http://cholangiocarcinoma.org/the-disease/newly-diagnosed/
Free complimentary Book or e-mail download:
http://cholangiocarcinoma.org/news/foundation-resources/
Biliary drainage – stent information card
http://cholangiocarcinoma.org/biliary-emergency-information-card/
Register for a CURE
The International Cholangiocarcinoma Registry
http://cholangiocarcinoma.org/professionals/research/patient-registry/Jim….a warm welcome is heading your way. You have reached out to a fantastic group of people eager to share their thoughts and experiences with you. I much agree that we must approach the diagnoses of this cancer with a good dose of hope as well as understanding of the complexity of this disease.
Have you considered a “second” professional opinion from a surgeon “very” familiar with this cancer?
You may also want to consider a consultation with an interventional radiologist as well as an radiation oncologist and then an oncologist.For a basic overview, the Cholangiocarcinoma Foundation offers a free complimentary Book or e-mail download:
http://cholangiocarcinoma.org/news/foundation-resources/
I am sure that others will be around real soon and share their thoughts and opinions with you as well. In the meantime, I am happy that you have found us. We are in this together.
Hugs,
MarionMy name is Jim and I am writing this short introduction as the husband of a beautiful woman (Kimberly) that was just diagnosed with inoperable ICC. I state that it is inoperable as this is what the doctors have told us, however I will always keep the faith as we move forward to see the day that the tumor (aka “the monster”) as my wife calls it will finally be removed and she will be “cancer free”.
I feel it important to stay up to date with new findings and information, but also just as important to hear what others say as they are going through their fight against this disease.
I look forward to further postings and gaining knowledge and hope from all the wonderful people that contribute to this forum!
All my best! Jim
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