My Husband and Cholangiocarcinoma – Part 2
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Margaret, I am so very sorry to hear you are calling Hospice but Tom will be so much more comfortable. Teddy loved his bed and I set it up in the living room which was comfortable and bright for him as well as visitors. Not to mention the big screen TV. Making Peace with God and others, sounds so familiar and don’t sell yourself short. You will be strong just like you have been all along this terrible journey. It’s not over yet and now you will spend quiet, quality time on your Honeymoon as Teddy called it. We are here for you and if you need to talk let me know.
Thank you everyone.
Two days ago, Tom said “It’s time to call the kids” – he didn’t think he was going to make it through the night.
Now we are making arrangements for a hospital bed so that he can come home. He is ready and has made his peace with God.
He’s righted a wrong that happened late last year and now has healed a rift between his niece and nephew. He spoke to both of them last night on the phone. I had reached out to the niece and she called back and wanted to talk to her Uncle Tommy. Both were crying and telling each other that they love one another. Then about 2 hours later the nephew called and Tom asked him to forgive him. The call ended on a positive note with both of them crying – he tries so hard to “Keep the family together”. I was so proud of him last night.
Tom says that now he can rest in peace . We are making plans for Pallative care and then hospice. This is so hard but I’m staying strong for him. He needs me more than ever now. And I’m still hopeful that this will turn around…
Go with God, I love all my CC family.
Margaret
Margaret,
Sorry to hear of the latest turn of events. Know that I am thinking of you and Tom and hoping for the best. Take care.
Love & Hugs,
DarlaMargaret….Legend or senior member you and Tom deserve the accolades. Finges are crossed for the nasty infection to respond to the treatments.
Know that a tidal wave of love is heading your way.
All my best wishes,
MarionMargaret
I’m sorry to hear that Tom is back in hospital and I hope you will have him home soon.Your a real legend here.
Take care
Gerry
Dear Margaret, I feel so bad for the Tom/Margaret duo! But as we all know comfort is the key here. Speaking of reward clubs (Patty) he could also get one for tubes! Take care, we are all thinking about you both a whole lot.
How about that? You are a Legend, it does have a nice ring to it, not all legends are old.Thank you Pam. Wow I went from a Senior Member to a Legend! Doesn’t that make me feel ‘old’. Going to call the hospital in a few minutes to see how he did overnight and make my decision if I’m working today or going up to the hospital..
Hugs,
MargaretMargaret,
Sorry to hear this news, keep us posted. I am also wondering if there could be some kind of rewards club for CT and other scans. When you have so many scans you get such and such reward and you move up in rank like we do here on the board. Tom is surely some kind of Scan Master at this point so here is hoping for good results.
Patty
All:
Tom was admitted to the hospital today with what they are calling a lung infection. His doctor told him he looked ‘Gray’ and did not like his color. He is on two high power antibotics and breating treatments. He is where he needs to be. We discussed the 5-Fu chemo that he is on and since it appears to be too tough on Tom, she is considering going back to the Gezmar/Cisplation combo as he tolerated that better than most people do. And she also explained that at some point no matter what they do/try, the cancer can get really aggressive and at the point no matter what or how strong his will to live and beat this cancer, when they feel that there is nothing more to be done, we will move to Pallative care and hospice. She is glad that he got an additonal 2 years and for the most part (with some ups and downs) it was a pretty good two years. She is pleased with his progress up to this point and after the upper respioratory issues are resolved, she will meet with Tom and I and come up with a game plan, she wants another MRI/CTScan to see what that new tumor is doing.
Go with God and KEEP KICKIN’ THAT cancer!
Hugs,
MargaretThanks everyone! Procedure went well, they couldn’t get all the fluid but got some out. He’s feeling a bit better. This is the 2nd time he’s had to have it drained off.
And YES I’m excited about the babies! My 2nd daughter is the one expecting and Tom’s first born grand daughter is expecting the first great grandchild! And my younest daughter and her husband are trying for another and it doees not matter as long as I get a girl!!
Love,
MargaretMargaret….I am so sorry to hear of the latest developments with Tom. Tomorrow’s procedure will make him feel sooooo much more comfortable.
You will keep us posted, right?
Two new little ones gracing your life within the next few month; how lucky is that. You will keep us posted on this too, right?
All my best wishes,
MarionHi Margaret,
Sorry to hear about Tom’s ascites and your visits to the ER again. Hopefully they will get the draining done today so that Tom’s belly can get back to normal again and that he can get back home also. And congratulations on becoming grandparents again, and also for becoming great grandparents! What great news!! Time for another tatoo perhaps???
My best wishes to you both,
Gavin
Now Margaret, you tell Tom that I said they sell Santa suits so he doesn’t have to go filling his tummy with water!!! And its too early anyway, Thanksgiving is first!
Seriously, I hope everything goes well and he is back home lickety split. By the way I am a GGrandma on Teddy’s side and it’s just always so wonderful to have babies around. Hope all goes well!
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