My Mom
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Posts
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Hi Lainy – Thank you for the welcome! What a wonderful family this is….We already tried compazine and did not work for her. Hopefully, the doctor can figure out on another med to give her. The fentanyl patch has been mentioned to us for my mom. Glad to hear it works well for the pain. My mom is also at home under hospice care. Thank you very much for the warm welcome and your feedback. God Bless your husband! May you stay strong too….
Hello Simon, and welcome to our wonderful family. Kudos to your wife for being such a strong woman and a wonderful fighter. You are so right that attitude and staying positive have so much to do with winning. We thank you for posting your wife’s story and please visit us often. Wishing you and your wife the very best.
Hello Irishgirl and welcome to our wonderful family. My husband Teddy is now in home Hospice and just switched from Morphine to the Fentanyl patch and I am so glad we switched. Beside wearing the patch he takes a breakthrough dosage hourly if needed. No pain with the patch. For nausea he is on Compazine. Works in like minutes. You said in the beginning of your posts that this is a rocky road. Yes, indeed we have used that desription often. Stay strong but take care of yourself too and I truly hope you find some comfort for your Mom.
Thanks Sunshine – I did read about Marinol maybe I will ask the doctor about it. Thanks for your feedback….One day at a time!
My Mom takes Marinol and that helps her nausea. We were on twice daily, but side effects were yuck. Once daily is enough. Wish I could help more.
Hang in there and talk, talk, talk to the Dr and nurses-question everything because you are stuck in a learning situation that you probably don’t know anything about. Keep the faith and the fight going, we are all in the same boat paddling like crazy trying to make sense of the disease and the proper treatment for our loved ones.
Hi Gavin – Yes all her nausea meds are taken orally. Maybe I should talk to the hospice nurse and doctor and see about the syringe driver. I appreciate your feedback and information on what you have gone through because when you can’t get answers from anyone its good know I can go to this site and their are people out there who are going or went through this same process. Thank you again for being on this site and giving me some direction… It still boggles my mind that the doctors have told us this is such a rare and uncommon cancer and not many people have it and the more research I do the more people I find that have this horrible disease….Thanks again Gavin!!
Hi Irishgirl,
That is great to hear that you are staying positive, as your mum will need you to do this and she will need you to be there for her through this. I am the only child of my parents, my mum has copd then my dad was diagnosed with his CC and I was the carer to them both. It can be hard to stay positive, but I know that you will, and we will all be here for you through this.
As to your mums mausea meds and all that she has tried, were they all oral types of medications? If so then this was what my dad did and he had a lot of issues with nausea and he tried a lot of different types of meds and combinations of meds. When my dad was under hospice care, they changed all of his meds from oral to that of a syringe driver. This way, he was not having to swallow his meds and then throwing them up due to his nausea, but he was getting them through the driver. And there are also other ways of getting these types of meds such as suppositories. These may be something that are worth discussing with your mums doctors.
My best wishes and hugs to you and your mum,
Gavin
Hi Simon – God Bless your Wife. I am staying positive. I am the youngest of 6 children so my Mom has a wonderful support system and we been through this with her from the start. I have learned also to take one day at a time and cherish every moment. Thank you for sharing your wife’s story with me – I hope she continues to stay positive and keeps the faith….
Hi there, I too am new to this site, and is the first time I have posted anything on here. Really sorry to hear what you’re going through. My wife, in her early 40s, was diagnosed in Jan 2008 with cc, her only symptom being a swelling in her legs. Almost 2yrs on, she is now looking to start a phased return to work. Last year she was on Gemcit, then this year she was taking Oxal & 5FU, plus she had SIRT to one side of the tumour in June. The trick is to keep positive and keep going. Side effects of treatment and the tumour can be unpleasant, but I have learned very much that everyone is different, and that NO-ONE can predict with any certainty what this cancer will/might do. My wife has now been told 3 times over the last 20 months that she has only a couple of months left to live, the last time in March of this year. Positive thinking and complementary therapy for my wife continues to be a great help to deal with this terrible disease. My advice would be to be thankful for each day as it comes, feel lucky for the simple things, and that gratitude will give you and your family the strength to deal with whatever this throws at you. Here in England, we are lucky enough to have the Christie Hospital in Stockport, Manchester, who continue to do wonderful things for my wife.
Good luck, and very best wishes. Simon
Hi Marion – I had a feeling the vomiting could be relentless. The problem is my mom doesn’t want any kind of tubes or anything. She is on her 4th different medicine for nausea and vomiting and nothing is working and I am just assuming the cancer is just progressing fast just the like the doctor said it was. I guess the higher sedation might be the way to do – I will have to ask the doctor. She is just so weak and has changed so much from June – just so unfair. Thank you for your reply on my post…Hugs to you too!!!
Hi Gavin – She doesn’t eat much at all, but when she vomits its all bile and its like a faucet and can go on and on for hours. Right now for pain she is on diluated every 3 hours it does decrease the pain but its always there it never goes away. Thank you so much for replying to my posts – it means alot to me
Irishgirl…..I am sorry to say that the vomiting can be relentless. In fact, our Kris had mentioned it in one of her postings. And, my husband also suffered from it. We had inquired into a gastro. tubing allowing the vomit to drain into an outside bag and I wish that we had proceeded with it. Unfortunately, by the time we were ready, my husband was too weak for the procedure. You might want to speak with the physician. Somehow they must address this, as your Mom is suffering. If tubing cannot be inserted then possibly, a higher form of sedation is needed. My heart goes out to your Mom.
Hugs
MarionHi Irishgirl,
Welcome to the site. Sorry that you had to find us all and I am sorry to hear about your mum. But I am glad that you have joined us all as you will get a load of support and help from us all. I know how hard this diagnosis is to hear as I heard it with my dad. Like your mum, my dad had no obvious complaints and then the jaundice appeared so he was admitted to hospital for over 3 weeks of tests, then we got the news that he was diagnosed with inoperable CC. And again like you and your mum, the news of my dads CC was a total shock to us all.
You say your mum vomits alot, and this is something that my dad did also. And I know you say that your mum doesn’t have an appetite, but does she eat and if so, is she vomitting after she eats or is it just bile in general that she is vomitting up a lot? How is your mums pain right now? There are a lot of things that can be done to deal with pain, and if your mum is in a lot of pain then I think that this is something that should be addressed now with her docs or the hospice care team.
We are all here for you and if we can help then we will. So please, keep coming back here, post away and if you have any questions then keep asking and we will all help if we can.
My best wishes to you and your mum,
Gavin
Dear Irishgirl,
With the time difference our overseas friends won’t often be on the site at the same time. I’m sure when they read your post the answers will come flooding in. You could also repost under the Pain managment section of the forum.
Best wishes
Andrea
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