My new onc

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  • April 2, 2013 at 3:30 am #70416
    willow
    Spectator

    Kris, this sounds promising and I am glad you like your new oncologist. Keeping you in my thoughts and prayers for success with this medication. Willow

    April 2, 2013 at 1:54 am #70415
    pamela
    Spectator

    Yippee, Yippee, Yahooooooo!!!! I am so happy you finally found someone else to be your doctor. Having the right doctor makes all the difference in the world.
    Your world will become so less stressful.

    April 2, 2013 at 1:15 am #70414
    holly22a
    Member

    I love to hear about new things to try. You rock, Kris!

    April 1, 2013 at 10:39 pm #70413
    Randi
    Spectator

    How very exciting Kris!! Yay for you and your new onc!
    -Randi-

    April 1, 2013 at 9:57 pm #70412
    lainy
    Spectator

    OMGoodness, Kris. I am so elated! I am over the moon! Happy as a lark. I would do 1 push up if I could get up off the floor after! How soon could it start and looks like it is for 4 months? Know what? The GI I am now going to, who saved my life 2 X now, said this, when I told him of my concerns with the Humira side effects for UC, “nothing else is working AND the benefits could very well outweigh the side effects” and that was when I decided to go for it and guess what? Only a weakness in my legs and some tiredness. I can live with that and if the side effects are less than chemo, you are tough, you can live with that! yippee

    April 1, 2013 at 9:33 pm #8170
    kris00j
    Spectator

    I met with my new onc today. You like those words, Lainy, Marion, Pam???
    Her suggestion: a phase 1 clinical trial using no chemo. This drug (LY2801653), as I understand it, is to work with the body to keep the disease stable. I can handle that, as I am not “sick” and was not looking forward to chemo. If we can keep it stable for four months or so, I can revisit radiation!!
    I am so excited, but need to read all 27 or so pages.
    It looks like there are side effects, but not as bad as chemo. And they will need to do an endoscopic biopsy thru my stomach wall to get to the new node to have a biopsy done. They are also using genetic testing to see how “we” handle the drug…
    And if it doesn’t work, the new node is not in that dangerous an area where we need to worry immediately. If it doesn’t work, we go to the evil that we know: chemo. More on the trial as I learn more.

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