Not only a Plan B, but Plans C and D, and maybe even E
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- This topic has 72 replies, 9 voices, and was last updated 9 years, 9 months ago by marions.
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February 28, 2015 at 9:38 pm #86482marionsModerator
Duke…seems you had a delayed response to the steroids. Wishing for you to get some rest tonight.
Hugs,
MarionFebruary 28, 2015 at 7:20 pm #86481lainySpectatorGav, so easy! Use 2 bottles of V8 juice, add 2 cans tomato soup, lemon juice and brown sugar to taste. That’s it. Add 1 head of cabbage chopped and make your meatballs how ever you like them. Freezes well too.
February 28, 2015 at 6:37 pm #86480gavinModeratorHope that these numbers start changing for you very soon Duke. And hope that you can get some good sleep as well as I know how much my dad suffered with the not sleeping at night too well.
Cooking in the middle of the night Momma, now that’s planning ahead! Sweet/sour meatballs sound good, never had them before and I do love cabbage as well!
Gavin
February 28, 2015 at 4:16 pm #86479lainySpectatorHey, Cuz, when the sun comes up that is daytime, when it goes down that is sleep time…now you got it straight??? I know it is frustrating as I have terrible side effects from my colitis infusions and I also was up until 2AM this morning. In fact I made dinner for tonight!! Sweet/sour meatballs with some cabbage thrown in. (Since we always talk food). I honestly hope things start going the better way. I like the letter E anyway as I am really Elaine. Wishing better numbers and results for you!
February 28, 2015 at 3:16 pm #86478dukenukemMemberKilts and food seem to be frequent tangential subjects.
Anyway, had a FOLFOX6 treatment Wednesday. Still without the 5FU in the chair, only with the pump. Platelets were 115,000, highest in months. Still having a heightened sensitivity to cold in my finger tips. Goes away after 4-5 days. CA 19-9 rocketed up though. Had been running 70-120 since last July but is now 174. Might have to push for another sample in the next treatment instead of waiting until following treatment. Option E might be closer than I thought. Diuretic still working.
Another change. Normally the steroids keep me up the first night. Not this time. Slept fine the first night but was up until 5:30 the second night.
Duke
February 20, 2015 at 9:19 pm #86477iowagirlMemberGavin…you are a hoot!!!
February 20, 2015 at 6:40 pm #86476gavinModeratorI guess that no other website in the world can talk of Hypoxia Inducible Factor Expression in Intrahepatic Cholangiocarcinoma and kilts on the same thread.
Always knew we were special!
February 20, 2015 at 6:38 pm #86475gavinModeratorMore than happy to wear the kilt and do the Highland Fling if it will help Duke!!!
Everyone seems to like the kilts!!
February 20, 2015 at 4:18 am #86474marionsModeratorHere is a bit relating to previous discussion re: Kilts
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=47481#p47481
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=12501#p12501Hugs,
MarionFebruary 20, 2015 at 4:03 am #86473iowagirlMemberWhat a hoot……for some reason this group always gets back to the topic of kilts.
February 20, 2015 at 3:13 am #86472dukenukemMemberLet’s see what my nephew answers before we jump to conclusions. But if he does, Mama Lainy is within her rights to demand a new picture.
Duke
February 20, 2015 at 2:04 am #86471middlesister1ModeratorDuke, Should this be posted under recent kilt discussion on members cafe? Gavin says he wasn’t pictured but maybe we weren’t looking closely enough.
February 20, 2015 at 1:19 am #86470dukenukemMemberGavin –
The obvious question is: Do you wear a kilt when doing the Highland Fling?Duke
February 19, 2015 at 6:25 pm #86469gavinModeratorLong face is away Duke and I’m doing the happy dance for you! My version of it anyway which is sort of like the Highland Fling!
Gavin
February 19, 2015 at 3:02 pm #86468lainySpectatorOh, Duke, my neighbors are calling an ambulance as I cannot stop doing cartwheels! Not a pretty sight either. I am so happy to wake up to this post I cannot tell you!!! Like others have said that other opinions is so important. I am over the moon with happiness for you! Get ready to ride that donkey!
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