Sorry I haven’t written in a while
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Your post makes me hopeful as I face major surgery on Thursday and have not had any other treatment other than stent placement to relieve liver congestion so that it can be operated on. The whole course of this cancer and treatment are hinged on how the operation turns out and stories like yours give me hope that I have a better shot at this than I think I do….
way to go dave.. good news is a pleasure to hear, we will keep praying for you and everyone….fight on ….ron
YEA!!! We are so very happy for you! We love a good story. What a way to start the day. Please do keep us informed periodically as good news is so much needed here. Cause for you to celebrate, enjoy, enjoy, enjoy.
Just wanted to catch everyone up since my last posting on Feb 25. I had my second catch up chemo treatment last Friday. This past Wednesday I had my CAT scan. Today we got the results. I AM NOW A SURVIVOR. My cancer is now in remission. They compared the not so good December 2008 CT with the one this past Wednesday and the PET scan. They couldn’t find any cancer. So, no more treatments. I will be followed for years but that sure beats treatment. I go back for a CAT scan and blood work every 4 months for the next few years.
Everyone’s treatment is different. From what I have read the standard procedure is chemo and radiation first then surgery. If I can stress one thing, in my case the surgery is what saved my life and they did it first followed by chemo. I never needed radiation. As you know I was only given two months to live and here I am seven months later writing this posting. Please talk to your doctors and see if doing surgery first is the best thing for you.
This website is a blessing. It has helped me cope with this terrible disease. Just writing all of you was great therapy for me.
My wife and I want to thank everyone for your thoughts and prayers during the last seven months. Again, we want to thank everyone. This is truly a blessed day for us.
If you want to know more about my case, just ask. We are all in this together and together we will beat this rotten disease.
Love to you all
David
David,
I would raise “Cain” with these people. The WHOLE point of getting a power port as opposed to the other kind is so that it can be used with contrast!
It’s hard enough to have this cancer without having to continually educate the medical community!!!!! (And I’m in the medical community!!_
Keep pushing. Hang in there and know you are in my thoughts and prayers.
Hugs!
PamPam,
I can’t get anyone that is performing a PET or CT Scan to use my port. Even when I tell them it’s a power port. They say “We can’t take a chance in clogging the port” Seems like a poor excuse since all my nurses and the doctor who put it in say they can use it. That’s the whole idea in having a power port. Eventually I will get them to use it. It’s just a matter of time.My nurses use it for chemo and bloodwork so I do get stuck less
David
David,
Hang in there. Getting a power port was the best thing my Mom had done in this journey. It’s the type you can shoot contrast material into and was helpful in her scans.
It made getting the chemo a breeze as well as bloodwork much easier.
Stay strong. You are in my thoughts and prayers.
Hugs!
Pam
David – Sounds like good news. Congrats. One thing I learned from one of my PET scans is that there is always a build up of glucose around the kidneys and bladder – just the way the stuff pools together I guess. So yes, agreed, best to leave the evaluation to the experts.
Best of luck for continued good news.
-John
We met with the oncologist this morning. My PET/CT scan came back negative. That was such a big relief. As everyone knows, we looked at the CD and thought we saw hot spots. One thing I learned, we are not doctors and no matter what you think you see, you must not worry. The doctors are the experts and they will tell us the results. If the results are bad then you can worry. No sense in worrying twice.
My treatment plan now is two more chemo treatments then a CT scan. It will be compared to the one in December that showed the cancer spread according to the radiologist. I finished treatment #1 today. Treatment #2 is next Friday. Then the CT the week of March 9. I am even more on edge since the December CT was positive. I am going to try and take my advice from above. Don’t worry twice. We can’t change the outcome. What is meant to be is meant to be.
I will keep everyone informed about my progress
I want to thank everyone for their thoughts and prayers. I wouldn’t be here if it wasn’t for prayers.
David….this brings to mind one of the medical symposiums I had attended where slides were shown. The experts evaluating the spots disagreed as to whether they were malignant or not therefore, what are the odds for any of us knowing the answer to this? Until Wednesday I will be thinking nothing of positive thoughts for you and am crossing my fingers for great results.
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