Survival…Please tell us your latest milestone

Tagged: acelarin, ileostomy, stage 4, TPN

This topic has 227 replies, 63 voices, and was last updated 5 years, 7 months ago by bglass.

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November 4, 2013 at 11:33 pm #64677

lisacraine
Spectator

I love reading 7 1/2 years…this is fabulous news…congrats!
Lisa

November 4, 2013 at 9:38 pm #64676

lainy
Spectator

YEAH! Staying true to your name…Be Good! A real super hero! You have no idea what a post like this does for our family! We need the hope and you have given it. Would you mind posting your story or some of it so others know what and where? Thank you for you post and just that little bit will go so far! But we would like to hear more if you can.

November 4, 2013 at 9:32 pm #64675

johnnybgood
Member

I am celebrating 7 1/2 years of good health, diagnosed Feb. 2006, Treated Mayo Clinic in Minnesota.

September 19, 2013 at 1:09 am #64674

pattimelt
Spectator

Very encouraging! It does give us new cc patients lots of hope. It has been 1 year since I was diagnosed.

September 18, 2013 at 4:28 pm #64673

pfox2100
Member

I love reading these posts. This gives me hope and a reminder that we should never give up the fight. I am 34 dammit and I am not ready to go anywhere anytime soon. I love to see that miracles really do happen!

September 18, 2013 at 4:08 pm #64672

thebompie4
Member

This is not my personal experience—and I don’t even have a name,
but in mtg with a 3rd opinion onc. here in our home town who
actually said he sees A LOT of cc–he said he has a patient who
is 8 years out with this cancer and doing well!!

The patient had a resection and after 4 yrs the cancer came back
and then this person has been 4 MORE years doing really good.

Eight yrs seemed FANTASTIC to me. Just thought I would share.

Even though it’s “he said, she said” it is a factual example.

September 18, 2013 at 3:05 pm #64671

ghannam80
Member

Kris , I wish you all the best , you are a great fighter and hope source for us

September 17, 2013 at 6:07 am #64670

kris00j
Spectator

I’m on an inhibitor drug from Lilly. It doesn’t have a name yet. Still in phase one.

September 16, 2013 at 10:04 pm #64669

holly22a
Member

kris, I have forgotton, what trial are you on?

September 16, 2013 at 4:56 pm #64668

lainy
Spectator

Dear Kris, hip, hip hooray! You go girl!!!

September 16, 2013 at 4:40 pm #64667

kris00j
Spectator

Update on me…
31 months and still feeling good!
Entering the 6th (4 week) cycle of this trial, and everything is still stable.

September 16, 2013 at 4:38 pm #64666

kris00j
Spectator

Derin, what wonderful news!! So happy, happy, happy to read it!

September 16, 2013 at 2:51 pm #64665

lainy
Spectator

Derin, astounding news!!!! Keep it coming!!!

September 16, 2013 at 2:43 pm #64664

hamptonsarasota
Member

2 year scan: “Stable Examination. findings are not suspicious for tumor recurrence or metastatic disease.” Yeah baby!!! Will post in Good News also with more details…

August 22, 2013 at 6:21 pm #64660

gavin
Moderator

This is brilliant news Lucian, thanks very much for checking in with us all and sharing that!!

Best wishes,

Gavin
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