Survival…Please tell us your latest milestone
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- This topic has 227 replies, 63 voices, and was last updated 4 years ago by bglass.
January 13, 2016 at 4:49 pm #64782middlesister1Moderator
Congratulations- SO happy for you and Mike!!!!!January 13, 2016 at 4:19 pm #64781iowagirlMember
Great news, Debbie. Congratulations, Mike!January 13, 2016 at 6:02 am #64780debnorcalModerator
my husband Mike is celebrating the one year anniversary of his resection. Cancer free one year and feeling great!
DebbieDecember 25, 2015 at 9:06 pm #64779
Congrats to you Randi on a few fronts, that is majorly kicking some cancer but!!
60??? No way!!
Congrats and happy birthday to you!!
GavinDecember 25, 2015 at 3:54 am #64778marionsModerator
Randi…..congrats not only once, but three times around and happy, happy Birthday to you. Much to celebrate, dear Randi and I thank you for allowing us to share your joy
MarionDecember 25, 2015 at 2:39 am #64777darlaSpectator
Congrats on another year Randi. Thanks for all the hope you give to others. Have to agree. I don’t believe in calendars either.December 25, 2015 at 12:55 am #64774RandiSpectator
Thanx Lainy! Can i add that I turn 60 on Saturday. Hard to believe cause I feel a lot younger than that for sure, but that is what the calendar reads. I have decided I don’t believe in calendarsDecember 25, 2015 at 12:48 am #64776lainySpectator
Hi, Randi, Girl! What am impressive resume you have! You just keep on keeping on! A true poster girl for beating Cancer no matter how rare or what kind! Awesome!December 25, 2015 at 12:35 am #64775RandiSpectator
Just putting up my annual survival post: 6 years this month!! I am a lucky girl and my greatest wish is that everyone touched by this disease be as lucky.
6 years for CC
16 years for thyroid
21 years for breast cancerOctober 27, 2015 at 2:48 am #64773mbachiniModerator
Awesome news! Four years is a great milestone!!October 25, 2015 at 1:59 pm #64772
Thanks for that Genevieve and like Lainy says, 4 years is nothing to be scoffed at indeed. He has been through so much with everything hasn’t he and I keep everything crossed for the RFA to do it’s job and send this thing packing once again!
My best to you and your husband,
GavinOctober 25, 2015 at 1:06 pm #64771lainySpectator
Genevieve. YIPPEE for your Husband! Fours years is nothing to be scoffed at and it sounds like you are at the right place to get this little situation zapped again! Being physically fit sure helps and a good attitude doesn’t hurt either. So much better to use your energy on “fun” things. Wishing for you both that he has a very successful RFA and please let us know how he progresses.October 25, 2015 at 6:57 am #64770genevieveSpectator
Just posting that it is now 4 years since my husband’s first resection for multifocal intrahepatic cc.
He appears very well, although we found out in August that the thing is back, though small, and he will have RFA to get rid of it soon. It has only showed on MRI, not on PET/CT or ultrasound, and it has taken some time for the doctors to work out whether he should have another resection, or whether RFA would be better this time to avoid another major surgery.
But, he has survived 4 years, and in spite of 3 resections and 2 lots of adjuvant chemo, has been well for most of that time and physically fit, We think that the exercise (he cycles a lot) probably helps.
GenevieveOctober 5, 2015 at 6:39 pm #64769marionsModerator
hercules Mon, 21 Sep 2015 06:06:50
Hello everyone, today is the tenth anniversary of the discovery of my intrhepatic (hilar) tumor. I had abdominal pain after an evening of deep fried chicken wings and draft beer, prompting a visit to my doctor. He said textbook gallbladder problem and ordered an ultrasound and drew blood. a week later I heard him mention cholangiocarcinoma, only to later find the ultrasound technician took the time to write a report on this intrahepatic neoplasm and called it “suspected cholangiocarcinoma ” a hard few words for any medical professional to ignore. The doctor that ordered the ultrasound doubted this possibility, but recommended that I see a specialist. The specialist had an even better idea of how rarely this comes along, and honestly doubted it to be cc . He ordered an ERCP to be done, which they took a scraping of cells on the exterior of the tumor, being careful to not disturb the tumor too much. The cell scraping was reported to be “cyst like cells, more like a polyp cell” he said, he added often there are these cells on the outside often and cancer cells inside. He referred a surgeon who he called “the best” , sounded like the man for me, dr. Henderson at the cleveland clinic . I contacted his office, and the system there was quick and efficient, things moved quickly, initial consult, cat scan, second visit, pre op tests, I had my liver resection surgery 1/26/06 and all went well, I went home on day 5 and became constipated by pain meds, and began using high grade cannabis for pain, and sleep . I went through many scans and blood tests for many years, all has gone well, one small lump along my scar about the size of a quarter. The past few years I have had bilary restriction issues at the site the bile duct was sewn together, it builds scar tissue inside becoming smaller as time goes on. I also have PSC so my bile duct has a scar like condition throughout, and it becomes inflamed at times, and I see light stools and dark urine and I know things aren’t moving right. It may be small bile stones restricting and then passing, or it may be the duct becoming inflamed, I take a anti-inflammatory drug for my bad shoulder called Meloxicam, it seems to open my bile duct up and keep things flowing well so far. I would be sure, anyone considering a stent in their bile duct consider anti inflammatory drugs before going for a stent. I have followed many cases on this board, especially long term survivors like 32 coupe , Bob had 16 years I believe when he last posted and he was having problems with a stent being clogged and infection . In the long run not just a re-occurrence can bring us down. I have been in control of my case for a while now, I believe a stent is a desparate act to open up a bile duct, I hope for continued success and just reading stories and going back years and following what others have done can educate you about what works. I believe the whole problem begins with irritation and inflammation and scarring condition in the tissues where liver bile flows and sits. I am a retired mechanic, not a doctor, but there is relevence and I always try to figure things out that go wrong. Theories can be right or wrong, but these doctors seem to have many. All of us are a little different but many things are the same. My advise to anyone dealing with this disease is keep a level head, don’t let your emotions run you. listen to your doctors, don’t see just one. Two heads are always better than one. Take care of yourself, eat well, get your rest, avoid stress. Even if you never had cc, this is a recipe for a longer life, take care, Pat P.S. woo hoo
Senescence is a beautiful thing….June 19, 2015 at 6:13 pm #64768
Brilliant news Deb, thanks loads for sharing that! Absolutely no sign of recurrence, love it!!! Hope indeed.
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