Survival
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Sandie….You are welcome. Before you know it, things will appear brighter again. Please, stay in touch.
Hugs,
MarionMarion
I have seen my doctor today who has put me on a short course of antidepressants to help me through. Your words are so full of understanding and I cannot thank you enough for your invaluable support. With love Sandie xSandi… It may help you to understand that sudden illnesses and/or radical treatments are traumatic to the body and to the mind. Often times, once we are able to identify the cause for the way we are thinking, the process of moving through it becomes easier. Most likely you are in distress physically and emotionally and while your body is healing, your mind also needs to follow suit. Know that it is normal to experience fear, guilt, anger, anxiety, and depression, feeling overwhelmed, detached, numb or apathetic. You may also have outbursts you can’t control. All is normal given what you have been through. Be kind to yourself. Allow yourself to regain strengths emotionally and physically. You deserve it.
Hugs,
MarionDear Sandie,
I am sorry to hear how you are feeling right now. I can’t really offer any practical help from experience but I wonder if it may be worthwhile you asking Dr Giles here on the website about your feelings right now? I know that he has helped many of our members here and maybe he could be of use to you too? It was just a thought I had, and if so he can be contacted here –
http://www.cholangiocarcinoma.org/ask.htm
I hope that you can get some help with this and know that we are all here for you.
Hugs,
Gavin
Hi,
If you regard cholangio intrahepatic CA that you had is a chronic disease, and manage the disease as doctor required you to do so,;keep up to date on the new treatment and potential drug development to “cure” this CCA.
Then you are an informed patient and you will not regret about the future outcome even if it is not what you exactly anticipated.
Others will come in soon to cheer you up.
God bless.Dear Sandie, this can be a reaction to other MEDS or a delayed reaction to the whole roller coaster ride. I would give your ONC a call and tell him what you are feeling and maybe a little boost is needed, he will know best. Hope you are feeling up to par again real quickly. Please keep us posted.
Dear friends, it is only a couple weeks ago I was on top of the world and it seemed everything positive was happening to me. But something has changed and I now feel depressed and trapped, like someone has taken away my security blanket and left me in a hazed confusion. Physically I get stronger slowly every day but emotionally and mentally I feel I am back pedalling. Is ths normal?
Hi Sandie,
This is great news!! Thanks for letting us know and looking forward to hearing more good news from you.
Best wishes,
Gavin
Finished radio and chemo and yesterday’s MRI scan clear. Doctors happy with blood tests. Thank you to everyone for just being there. xxx
destraub… hello and welcome to our site. You might take some comfort in knowing that on this site only recall a handful of people, who upon recurrence present with particular, favorable, circumstances to allow for a repeat surgery of this cancer. Similar to your husband the majority of people move on to another chemotherapy regimen. We have seen some excellent responses to the available treatment and there is no reason to believe that your husband won’t be equally as fortunate.
In my family we used this analogy: We compared this cancer to a fire – it was extinguished and we then treated the flair-ups via any means available to us. So, stay hopeful, destraub. This board is known to stay positive and supportive something you will experienc real soon, as others will chime in and share their thoughts with you also.
Hugs,
MarionHi,
Mayo told me that my cancer,which completely resected the second time,will most likely to come back after adjuvant chemotherapy when I made that consultation to learn more about my cancer. I am still on the adjuvant chemotherapy . As you may know,the recurrence rate of this cancer is very high(50-75%) ,but it does not mean that we should not keep on trying our best to fight against this cancer; buying time as long as we can by using current available medical treatment methods– chemotherapy agent,targeted agents and radiation treatments ; and hoping the new drugs can be here in time for us.In my opinion, Mayo Clinic is very conservative but truthful in their assessment .
So, as they said, try the chemotherapy tomorrow,take it one day at a time .
Try to get an opinion on radioembolization for your husband to see whether he qualify or not if there are no mets to other parts of the body except the liver.Be strong and knowledgable in fighting against this cancer; be hopeful and practical in dealing with this disease knowing that you have try your best for your husband and there will be no regret when the time has come.
This is my way of looking at this disease and only God’s grace will say otherwise.
God bless.My husband had small tumor in distal eng of gall duct.had whipple in sept. 2010 margins were clear, did radiation and xeloda . now has 2 to ours in liver. He did chemo here in grandrapids mii. And tumor still grew Went to mayo and they say he cannot have surg. Or ablation because he has severe fatty liver. We were not ever told that before. So tomorrow he will try new chemo. We are told even if tumors shrink they won’t try anything else here or at mayo. Mayo said there’s no point in try ing surg. Because this cancer WILL come somewhere else. We are praying for a miracle!
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