Treatment Has Begun // Week 1

ONE OTHER NOTE:

As I continue to do my research I find it very weird that my mother hasn’t experienced any jundice whatsoever. It makes me want to ask more questions and challenge her doctor as the only cancerous tumors they’ve discovered thus far on intrahepatic or on the outside of the liver on both lobes. They did mention though that they saw build up of what they think is meta activity in her abdomen lymph nodes but feel as if they should’ve biopsy that before determining that this was CC. I could also be tired and delusional in telling myself that maybe they misdiagnosed her and that I’m just dreaming all of this up. I only say this because if it was determined that the cancer hasn’t spread to her lymph nodes that maybe a transplant could be an option….again I’m just speaking out loud and partly in frustration with my mother’s current doctor and medical facility. I feel like others on this discussion board had much more of a team then she currently has. I could also just be reading and watching too much on the web and driving myself crazy but thats what a son is suppose to do for his mother…..just looking for any other signs of hope in all of this.

I totally agree with you Lainy! Thank you so much for all your love and support! Merry Christmas!

UPDATE:

Sorry for the lapse in an update. Monday my mother was released from the hospital which was wonderful news to all of us! Her body was making the needed WBC and platelets for them to approve releasing her. So again thanks for all your prayers it’s wonderful to have her home!

Met with the doctor on an updated schedule since she has missed what will be 2 round of chemo Monday and they have suggested a lower dosage and starting back up on the 26th of the month. They mentioned that they couldn’t fit her in any sooner which was a bit frustrating to here given that I’ve read many stories about missing scheduled chemo and the effectiveness lost when a lapse in time has taken place.

Regardless we’re all very happy to have her home. Only thing she battles is night sweats and swelling in her legs which they are saying is from all the IVs she received when she was in the hospital, as of now her swelling is only that of a visual discomfort so they don’t seem worried about it at all.

Looking forward to Christmas together as a family. Thanks again for all your prayers. I’ll post an update later this week.
Joe

UPDATE:

It has been 3 weeks of chemo in my mother’s body and 1 week total by the end of today that she’s been in the hospital for low whit blood cell and platelets. Her numbers keep going up and then go back down, the momentum we had running into chemo seems to be running low and today were just told that she’ll need her second blood transfusion. I’m scared out of my mind and I can for the first time see that my tough mom is also scared. I keep hearing that this isn’t uncommon but we’ve now been in the hospital for a week and I’ve watched a half a dozen platelet bags put in her and massive amounts of antibiotics.

Please keep her in your thoughts and prayers.
Thank you
Joe

I wish. I can hardly seem to get the attention of our doctor let alone another one for a second opinion on what is going on. Beyond frustrating, I’ve about lost it with our medical system.

UPDATE:

Well we’re now day 3 in the hospital still. Her platelets and white blood cells are having a difficult time being stabilized. Really feel blind sided here as the only real rebuttal from the doctor was…oh well I guess we need to lower the amount of chemo dosage as if he didn’t think thru it hard enough from the start. Very frustrated over here watching my mother in this uncomfortable situation while we can be spending better quality time together instead.

More updates to come….here’s to praying for the best tomorrow as they are on the 3rd bag of platletes and still her levels aren’t even close to normal.
Joe