andie

Hi Missy,

I totally understand how you feel and my Mom even more so. When my Dad was first diagnosed and chemo was an option friends and family would phone and visit but once my Dad was told chemo wasn’t going to be an option and he had a few months left, the visits and phone calls off certain family members and friends became less and less. This upset Mom and whilst Dad never said anything only “I have everybody who I want here with me” you could tell at times this hurt him. I know people probably don’t know what to say or how to handle things, and perhaps the people who didn’t visit were worried Dad would think “they are only here because I am ill”. At the end of the day they are putting their feelings before the patients, yes they may feel scared, they may feel upset but how the hell do they think the patient is feeling!!

Now Dad has sadly passed away those people who didn’t visit have voiced how they wished they had visited or phoned more, but they didn’t want to intrude. Well it’s too late to turn back time and it’s something they will have to deal with.

At times Dad didn’t feel up to visitors or the nurses were due in and he didn’t want people there the same time as the nurses. People had to fit around Dad, and the people thay really understood did, nothing was too much trouble.

Perhaps when they phone you could say “It would be really nice to see you, I know Kevin would like to see a different face than mine, someone different to chat to would do him and me good”.

And yes life is to short to be an ass!

Keep strong xx

Dear Minnie,

My Dad suffered no pain throughout his cc journey, only a little discomfort after a stent procedure, but then not enough to need painkillers.

It was always my main worry that he would be in pain, as reading alot of stories on here mentioned pain. Dad must have been one of the lucky ones and hopefully your husband will remain pain free too.

Best wishes

Andrea

Lainy, it really took my breathe away when I saw it. I haven’t had anything like it since but will definatley look out for objects in our future photos.

My Mom often used to see 1 star in the sky, which she said was my Grandad, and she said to my Dad, when you reach your next journey let me know you are there by shining in the sky. A few nights ago when Mom was looking out the window 2 stars were shining bright next to each other. She hasn’t seen it since.

Also on 3 occasions when Mom hasn’t locked up properly she has heard a noise which has made her go downstairs, hence discovering a door is unlocked. I’m convinced this is also my Dad telling her to lock up properly. as he was always worried she wouldn’t when he was in hospital! Luckily it’s not the main door she is forgetting to lock but still a door enough to worry Dad.

My husband keeps finding 5 pences in the strangest of places (pity it is not

Hi,

I want to add that like Lainy, I believe. Part of me questions why good people have to suffer so much, and why would a God put people and their families through so much pain BUT believing there is a Heaven is helping me.

Before Dad passed away he too was having conversations with loved ones that had passed. 2 hours before he passed away he sat upright desperate to get to the corner of the room. After that he said “I’m coming” previously he had been saying “I’m not ready yet”. From the Wednesday before he passed on the Saturday, Mom and I had been experiencing periods of coldness, like we were being wrapped in a blanket of coldness. This got stronger from the Friday and we really do believe that it was the presence of relatives that had passed away.

On the morning of Dads funeral I smelt his aftershave whilst washing up in the kitchen, it was so strong, almost as though he was standing next to me.

A few days after Dads funeral, I saw an orb on the upstairs landing outside my sons bedroom, I like to think this was my Dad watching out for my son who has been having a difficult time lately.

I like to think Dad is now with relatives and friends who have passed away, catching up on old times and looking over us until we are all together again.

Go Girl!!!

I would have done exactly the same thing if I was in your position. If a letter makes you feel better, write that too.

Love to you and Tom x

Hi Jennifer,

Welcome to our CC family. Where about are you from?

Have you got 2nd and even 3rd opinions? This is very rare and the more opinions you get the better, even if they all say the same then you know you have tried.

Before they let you Dad out after his stent did they check the bile level was coming down? I know my Dad looked jaundiced throughout his CC even when his stents were working. Tell your Dad to drink lots as it helps flush the bile out of the body.

Good luck with the appointment next week. I’d write a list of questions down that you would like to ask, take them in with you and ask the Doctor to write down and discuss the answers with you.

I’m sure someone else will be along soon with more advise soon

Best wishes

Andrea

Hi Jessee,

Did they fit your Husband with a plastic or metal stent when his bilirubin was high? If so the stent may have become blocked or like Lainy said he may have an infection which can cause bilirubin to rise. This can be sorted out with either a course of antibiotics or the stent being either cleaned out or a new one fitted.

What did the doctors say about the rise in bilirubin?

Bowel movements don’t effect bilirubin levels but your husband could drink alot to help flush the bilirubin out of his system. My Dad was always told to drink, drink, drink. He also took fresh lemon juice and warm water morning and night as we were told lemon helps to thin the bile.

Hope you get it sorted soon

Andrea

Great News Nancy!!! Heres to many more years of great results x