cherbourg

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  • in reply to: Mom passed last night ;-( #63418
    cherbourg
    Spectator

    the cholangiocarcinoma foundation
    5526 West 13400 South, #510
    Salt Lake City, Utah 84096 U.S.A. 801-999-0455

    in reply to: Mom passed last night ;-( #63416
    cherbourg
    Spectator

    Dear MM,

    Moms have a way of doing what they believe is best for their children. I lost my Mom in 2009 to CC so I know what you are going through. You and your siblings are the amazing legacy that she leaves behind. I know she is proud of all of you.

    The next days will be tough, but you will find a deep strength inside of you that will get you through all the countless decisions that have to be made. Be gentle with yourself in the coming weeks. Grieving is the hardest job we ever do and no two people will grieve in the same way or timeframe. Be kind to yourself and take your time to find your own way.

    We are all here for you as you tackle the next steps of this journey.

    I’m sending hugs and prayers for healing and understanding…

    Hugs,
    Pam

    in reply to: Lost my husband to this #63371
    cherbourg
    Spectator

    Teresa,

    I’m so sorry for the lose of Dennis. I lost my Mom to CC in April 2009 and it’s still very hard some days. I’m so thankful his passing was a peaceful one.

    Please take care of yourself in the coming days. Grieving is the hardest job we ever tackle. No two people will grieve in the same way or timeframe. Please know we are all here for you as you take the next steps in this journey.

    I’m sending hugs and prayers….
    Pam

    in reply to: I had this feeling!!! #63183
    cherbourg
    Spectator

    Teresa,

    I’m sending hugs, love and prayers as you and Dennis enter this phase of the CC journey….

    My heart is breaking for you…

    Hugs,
    Pam

    in reply to: Questions about antidepressants #62955
    cherbourg
    Spectator

    Pam,

    My Doctor prescribed a small dose of Xanax for me. I took a very small dose (once) a day but it was written for up to three a day. It was just enough to take the edge off but didn’t make me sleepy or drugged feeling. You may just need to try something else.

    There are numerous things available. This one was perfect for me since I was not worried about driving while taking it.

    It saved my sanity, made me a whole lot more effecient and pleasant. I hate taking medications but it was a godsend for dealing with all of the stresses of this disease.

    Don’t give up. My doctor was amazing and caring and knew exactly what was best for me.

    Hugs!

    Pam

    in reply to: Missing My Sister #62607
    cherbourg
    Spectator

    Grieving is the hardest job I’ve ever had…..

    I diagnosed my Mom in May 2008 and she died April 2009. After her death I was on autopilot for several months, busy with all the things a death brings. I gave her eulogy, wrote all of the thank you notes, cleaned out her closet, and when everything was pretty much done and grief really hit…I discovered the world had moved on and I most certainly HAD NOT! I really thought all of the anticipatory grief would have prepared me for the reality of losing Mom. I’m here to say….IT DOESN”T!!!

    I missed calling her on my way home from work everyday. I missed telling her about my children’s accomplishments. I would have given anything to just hear her voice! I was appalled when my best friend told me to get over it and move on….grief would not bring her back or change things. (As a side note here, it was only my Southern upbringing and my fear of prison that kept me from killing her….) Most people did not want to talk about even the good times much less my loss!

    I discovered I was mad at pretty much everyone….even God. My support came from some of the most unlikely sources…. This board was a godsend. I was able to rant, rave, ask questions and draw on the experiences of those who had traveled the road I was now embarked upon. I chose to be very kind to myself and gradually let go of those I felt were not supportive of me or my grief. Grieving is intense and personal. No two people will grieve in the same way or in the same timeline. I surrounded myself with people that truly cared and most of those had experienced the loss of a loved one. My husband was amazing. He had lost both of his parents and was so loving and supportive of me in my most crazy, insane moments. He and God pretty much took the brunt of my grieving. I’m pleased to say both loved me enough to put up with me!

    I’ve found embracing my grief and being open and taking the time to grieve has been the best road for me. I can still be reduced to tears catching a whiff of my Mom’s perfume in a store but each day the good memories are becoming the ones I remember most AND first.

    Our family has always been involved with church and charities. I spend a great deal of time outside of work being a volunteer with the USO and the Marine bases near my house. My son in love is a Marine so it’s personal as well. I view my volunteer work as a living tribute to my amazing Mom.

    I smile now as I come across my “Pennies from Heaven” and keep all of them in a jar on my desk.

    You’ll find your pathway and if you are kind to yourself and allow yourself to grieve, you’ll be OK. I’ve learned lessons and believe I’m kinder and more compassionate. I think I value the small things more. Remember…..if you had not loved so much you wouldn’t be grieving so hard…. Personally the love was well worth the grief…..

    We’re all here for you….take care!

    Hugs,
    Pam

    in reply to: Not the news we were hoping for. #62520
    cherbourg
    Spectator

    Sending hugs and prayers that this is just a small bump in the road. I know as a Mom you would rather this all be your problem and not your beautiful daughter’s!

    Please try not to cross any bridges before you need to. This is a good time to follow the 5 minute rule…..you do 5 minutes…then you tackle the next 5 minutes!

    We are all here for you and praying hard! Come here when you are afraid and / or need to just vent! We all have broad shoulders!

    Deep breath!…..we are all praying for you and Lauren.

    Hugs,
    Pam

    cherbourg
    Spectator

    Hi Susan,

    So sorry you had to join us but we are all here to help. I diagnosed my mom with Stage IV CC with numerous mets to the lungs, (I’m a Cytologist) so I know how hard this monster can be. She was 76, still working full time by choice, walking 6 miles a day and involved in Church and a zillion other things. She was diagnosed in May of 2008 and died in April 2009.

    CC is indeed a roller coaster ride. You do seem to be doing all the right things!

    I don’t know if anyone has mentioned it but there is a search engine on the site. You can query anything that comes to mind and just type it in and it will pull up comments.

    We also have Dr. Giles here as well.

    Don’t ever hesitate to vent, rant or sound off! We have broad shoulders and we all understand what you’re dealing with!

    I’m sending hugs and tons of prayers for you and your family!

    Pam

    in reply to: The end #62077
    cherbourg
    Spectator

    Oh Jose,

    I’m so sorry to hear the news of your beautiful sister’s death but am so glad her suffering is over. Your words of love brought me to tears. You did everything in your power to help and protect her.

    Please accept my condolences and prayers for you and your family. Please take care and be kind to yourself….grieving is such a hard job.

    I’ll hold you and your family in my thoughts and prayers.

    Hugs,
    Pam

    in reply to: What we’ve learned since the end of March… #62008
    cherbourg
    Spectator

    My Mom was on a drug called MEGACE. It’s an appetite enhancer and worked wonders for her. It was once a day and caused her no problems.

    We also used a protein supplement that I still use today. It’s a company called Unjury.com and the protein powders are amazing. You can check out their website. Duke’s chemo department recommended them to us.

    Hang in there and remember to take care of the caregivers….

    Sending hugs and prayers to you and your family!

    Pam

    in reply to: Lost the battle #61813
    cherbourg
    Spectator

    Oh Mary,

    I am so sorry to hear about your Dad. There is such a special bond between Daddies and their daughters….

    You are an amazing legacy that he leaves behind. Be kind to yourself in the coming days and give yourself time to grieve.

    Remember we are all here for you! I will keep you and your family in my prayers….

    Hugs,
    Pam

    in reply to: Susan Wise: April 1951 – May 2012 #61673
    cherbourg
    Spectator

    Julia,

    I’m so sad to read this news….Susan was so fortunate to have such a wonderful sister like you!

    I’m so sorry…..

    I will keep you and the family in my thoughts and prayers….

    Hugs,
    Pam

    in reply to: Paranoia #61639
    cherbourg
    Spectator

    Jose,

    I had to go back and look at my previous posts. This is what Mom was on the last couple of days….

    She was getting morphine, a scolpomine patch, atropine and lorazapam. I’m praying for both of you ….

    This is so hard…..

    Pam

    in reply to: Paranoia #61631
    cherbourg
    Spectator

    Jose,

    Diazapam was the drug my mother couldn’t handle. Please ask if by chance there is something else.

    Mom was seeing things, insisting my sister had been in a horrible car accident and was totally unable to sleep or be calm. I finally had to throw a fit, demand a pharmacist, the heart doctor, and the cancer specialists sit down and talk to our family and each other. I pointed out the problems started with the drug. I’m in the medical field so I had no problem throwing my fit. They changed her meds and it was amazing to see her return back to herself.

    It’s worth a shot.

    Pam

    in reply to: Paranoia #61626
    cherbourg
    Spectator

    Jose,

    We had several episodes similar to what you are describing. On one occassion, my Mom’s ammonia level was high. On another occasion she was found to have a bladder infection. The third incident was due to a drug she was given when her heart went into A-fib. I know how hard this is to watch a loved one dealing with this.

    You and your family are in my thoughts and prayers. Please remember to take care of the caregiver (YOU!).

    sending hugs….

    Pam

Viewing 15 posts - 31 through 45 (of 522 total)