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I would like to recommend my oncological surgeon at Johns Hopkins in Baltimore.
Dr. Michael A. Choti. I owe my life to him. He is an outstanding surgeon who specializes in pancreatic surgery, cholorectal and has done many bile duct surgeries. He is a wonderful human being as well with a great sense of humor. Very, very skilled.
People interested in him might Google his name and find all that he has done and is doing. The Cholangiocarcinoma organization had him as the featured speaker on a webinar in August 2010.I had surgery 29 th Sept…removed 2/3 of liver, gallbladder, bile ducts (which he reconstructed). I’m due to have my first CT Scan on Jan. 24th. Other than my incision which has had trouble healing in one section, I’ve been progressing well..just tired…Of course, every slight thing is a worry..I’ve had itching skin the past several days which was about my only symptom before so this is making me nervous!
Good luck on your mother’s surgery! I had a fabulous surgeon at Johns Hopkins to whom i owe my life.
Keep us posted.
KathyI am so encouraged by your success at 5 years. I, too, have young children, one daughter 12 and the other 11 next month. I have been devastated to think of leaving them way too early, but am heartened by your story. I go for my first post-op scan in a couple of weeks and am very nervous..hoping for good news.
Keep up your fight. You are an inspiration.I am interested in what you both have been posting. I had surgery Sept. 29th at Johns Hopkins and was told that there were clear margins and no lymph node involvement. All other pathology reports came back negative as far as spread to other organs. I, too, was told that no further treatment was necessary, but not because of the clear margins, but because my surgeon felt that chemo was not particularly effective. He did have me go to the oncologist who is working with a fairly new study of combining Gemzar and Zoloda and daily radiation for the final 5 1/2 weeks. I elected not to do it as there is not enough information out there to support going through that. My surgeon also said that in my situation with clear margins, etc. it still comes back in 50 % of the cases…not particularly encouraging. I go for my first CT Scan on January 24th and am keeping my fingers crossed. I’m trying to build up my immune system, reduce stress levels, am starting acupuncture, etc. It is definitely not an easy fight. I appreciate hearing what others have found helpful.
Kathy
