daddysgirl-2
Forum Replies Created
-
Posts
-
Jeff,
As everyone else has said before, and I will say it again…you are an inspiration to us all! I apologize for not having applauded you sooner. I truly believe that you are a gift from God to all of us who have traveled this CC road without a map. It has been your guidance and encouragement that has helped us to ‘forage on’. Your family and you are always in my prayers.
Jolene
(daddysgirl)mybdm,
May the Passion of Christ strengthen you as you begin this Divine part of the journey. It does so hurt, but God will comfort you. Sending up my prayers for you and your family.
Jolene
(daddysgirl)Kara and family, I am so very sorry for your loss. My own father passed away 2 weeks ago today from this awful cancer. We buried him the day you lost your mom. I wish you peace for the days ahead, and God’s comfort for the times when you start for the phone to share your day.
Deepest sympathies,
JoleneMy dad had pain in his legs, too. A ct scan found that the cancer had spread and was actually eating through his right femur. He had horrible itching spells, as well. I would stand there and scratch his back for several minutes several times a day. He really was miserable. Wishing you and your mom the very best surviving this horrendous disease.
Jeff and Marion, Thank you for your encouraging words. I am so very sad to share that my strong, handsome father passed away this afternoon. He just couldn’t fight any longer. I spent last night with dad at the hospital as I have been doing, and I suffered the ‘dark night of my soul’ where I secondguessed all my decisions, bargained with God, wondered if I had failed him…my cousin (a hospice volunteer) stayed with me and consoled me and counseled me…I fell asleep the most exhausted that I’ve been since I started taking care of dad 4 years ago on other medical issues. This morning I sat with my dad and held his hand. We prayed together (he was unconsious but I believe he heard everything), I freshened him up. “and with the dawn, rejoicing”. I was happy that Dad had slept through the night for the first time in a couple of years. He was peaceful. I asked that he be given morphine every hour and I believe he was painfree. I stayed with him until my younger brother and mom came to be with him. I told dad that I was going home for an hour and would be back. And I encouraged him to rest. He died 30 minutes after I left. I can only see the gift in this: for the past few years I had worked hard on keeping dad alive and healthy, he spared me having to watch him pass away.
Hello. My dad was diagnosed with cholangiocarcinoma Jan 28. I guess it has already spread to his spine. We were told he has 4-6 months, maybe a year. We are told that the chemo he is receiving is for palliative purposes solely. After visiting with a radiology oncologist who had confirmed radiology was not an option for dad, we began chemo. He is set to have his CT scan tomorrow having completed 2 rounds of chemo (though he missed one treatment because he was in pain, and another treatment-yesterday-because his BUN was elevated and his platelets were low–below 100,000) Dad has diabetes, and because of the location of the tumors (?) he is unable to stand/walk.
Dad is returning home in one week from the nursing home because the 100 day medicare rule will be spent, and I will be caring for him and for my mom who has advanced Parkinson’s Disease. My husband and I feel we are able to manage this undertaking…in our line of work (persons with DD), we have cared for persons with varying degrees of health issues and into their end of life care. I have also taken care of elder extended family members who were at end of life, so I am not a stranger to this situation. HOWEVER…this is my dad…who cared for me, supported me, loves me and so on and so forth and I am having such a difficult time being hopeful at the same time being able to realistically manage his care, as well as mother’s care.
I do have faith…a strong faith…but there are days, such as today, right now, that I feel so alone and helpless.
Thank you for this opportunity to “let it out” and most especially for this forum to be with others whose lives are affected by CC. Each of you will be remembered in my daily prayers. God bless you and your journey.
Jolene
