daniellemarg

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  • April 19, 2009 at 4:38 am in reply to: Husband newly diagnosed with unresectable CC – Vegan diet??? #28132
    daniellemarg
    Spectator

    Thanks Lulu,

    I appreciate your words (and your advice!!) I’ve never heard of probiotics in my life and will ask them about it tomorrow morning. He is on FIVE different antibiotics right now.

    Lulu, I don’t know what to say about your husband, it’s so awful what happened. These infections are so dangerous. I am so sorry.

    Jim sounds alot like your hubby – Jim is also pretty active. Thank God, he is getting the best care in the world at Mayo (Phoenix). They do an ERCP /stent change practically everytime he gets a cramp and when the one time he told them he thought a stent had dislodged they admitted him immediately and changed it. Re: Infectious Disease, thank God again, the ID team has been monitoring him – – he was ill after the ERCP (fevers) so they did cultures yesterday morning, which apparently grew something last night. ID/Onc/Hep actually instructed Emergency last night at 9:00pm and to contact us to admit him. He’s back in and they’re monitoring him v. closely. Thank God.

    Thank you again and I am praying for you and your family.
    Danielle

    April 19, 2009 at 4:22 am in reply to: Looking to connect with others facing this disease #28195
    daniellemarg
    Spectator

    Hi Mary,
    Welcome to the group. There are many members of the group whose experiences clearly do not fit the bleak picture painted the research (much of which is dated). You sound like a strong person – – I ‘ve also heard good things about Cyber knife.

    Kristen, thanks for posting your experiences, this is exactly what we needed to see tonight. My husband is just beginning his CC battle (diagnosed in Jan 2009 with Klatskin, currently can’t resect) and it is inspiring to hear to hear. I am writing from the wireless at the Mayo (my hubby has an infection which they’re trying to kill so that he can begin chemo). We both were pretty depressed tonight but reading your experiences was a good medicine.
    Warmest wishes,
    Danielle

    April 16, 2009 at 6:19 am in reply to: I got chemo and good news #27966
    daniellemarg
    Spectator

    Thanks Kris,
    Jim and I are VEERRRRRRRRRRYYYYYYYYYYY happy to hear the good news. Yippeee!!

    Thanks for making my day, wonderful, wonderful news.

    warmest wishes from phoenix,
    danielle

    PS – – thanks for the message John :)

    April 15, 2009 at 4:55 am in reply to: Husband newly diagnosed with unresectable CC – Vegan diet??? #28129
    daniellemarg
    Spectator

    Thanks Luluu,
    I was really pleased to see a post from you as I was thinking about you this morning (I read your post on a different forum). I am so, so sorry for the loss of your beautiful husband and I can’t imagine what you’re going through.

    Thanks for the recommendations – I must have read your mind as I actually bought the fighting cancer with nutrition book yesterday. My Australian husband’s diets has bionically transferred from a diet weighted heavily (pun intended) with Meat, Cheese, Icecream and Other Animal Proteins to vegetarian almost vegan. The Quillin book seems very reasonable and easier to follow than a pure vegan diet so we’re moving forward with it.

    It makes sense doesn’t it. Thanks also for the note about your husband’s infection – although it’s VERY important that he begin chemo asap, i am concerned that Jim’s infection may be worsened. He has fevers almost all the time (controlled with Tylenol) – – he’s had several weird infections (3 of them likely caught when he was in the hospital) – now’s he’s on a cocktail of antibiotics but there is no definitive diagnos of infection. Some say it might be ‘tumor fever’ and others say low grade infection. Anyway, at least it’s being monitored.

    Thanks again for the note. I am thinking about you and your family.

    April 14, 2009 at 2:24 pm in reply to: Husband newly diagnosed with unresectable CC – Vegan diet??? #28127
    daniellemarg
    Spectator

    Thanks so much for the warm and helpful responses. WHen resection was still a possibility (and it may be in the future!!) we were looking at the success others on this website have had. It really is inspiring and good for us to be in touch with people like you who are fighting this and finding success. We’re hoping that the chemo will help as the radiation helped stunt the tumour growth.

    Jim’s being treated at the Mayo(they’ve been WONDERFUL!) and is just finishing off week 5 of external beam radiation – they can’t do bracchy (sp?) because of the tumour’s location. For chemo, originally they suggested Xeloda but now are suggesting Gemzar (gemcetabine). We’re meeting with the oncologist again this week – – drug trials are also a possibility. I’ll definitely review the history here to see about the success others have had with their chemo treatments.

    April 12, 2009 at 11:21 pm in reply to: Help, My mum has nonresectable CC #18693
    daniellemarg
    Spectator

    Dear Andy,
    You and your family sound like a loving and strong group of people and your Mum had a lot to proud of. I am so, so sorry for your loss. She will always be with you and your brothers in your hearts.
    Danielle

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