danna0325
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I meet with a surgeon at MDA tomorrow to schedule when to put in my spacer. The rad onc told me even after having the spacer I still may no be able to get proton therapy for pretty much the same reasons as above but Dr. Javle doesn’t seem to think that’s going to be a problem so I don’t know. Hisprazr- Who is your insurance provider? Does your husband go to MDA? Hope all is going well with him now.
I too believe in miraculous healing and have strong faith. No we don’t always understand Gods way but we know that he knows what’s best.
I have an appt with Dr Aloia about the spacer and proton therapy next Friday. My oncologist is Dr. Javle, who does your husband see?
Yes, this is a local oncologist following what Dr. Javle says. Or supposed to be anyway. When it takes 6 hours they are doing everything separate, when t is faster they are doing my fluids at the same time as the Gemzar and Cisplatin. So it is still all being ran the same length of time I think, just several things at once instead of separate. I am tolerating it well and have never been sick from chemo. I’m just anxious to get ack to MDA and see Dr. Javle
. Kris, my WBC was always high too until this last time it was low. But I have a uti infection is probably the reason. My hair hasn’t really fallen out either but it did start getting so thin that I had to cut it off short. How long as your husband been on chemo? Glad he’s doing well with it. Thanks everyone!!Karen,
Thanks for the response. I am 30 weigh 142 lbs and labs are always fairly good. Hemoglobin is always low and WBC was low for the first time ever. I get two anti nausea bags, then fluids for 2 hrs which she has started combining with my Gemzar that runs about 70 minutes and my Cisplatin runs for about an hour. I also usually get potassium which I did not notice this time. It would all be fine if not for the fact that the first time I spoke to the Dr. About it he wasn’t very happy and made them start doing it 6 hours again, then when it happens again and I ask he tells me they have plenty of experience and know what they’re doing. Then why did he get on them about t the first time? All I did was ask I never said they didn’t know what they were doing. I will just wait till next MDA trip and talk to Dr. Javle and get a clear answer. And no, I’m not on any clinical s. The chemo has always been 6 hours long and now it’s not and thats all I know. Felt good to get that little rant out and thanks for all the helpful info Karen. Maybe if I show that to my local Dr. He will better understand my concern and look for a better answer on his part to give me!Thanks for the response Kris. Mine is done through a port. I would just feel better if it was done the way MDA says it should e done and to me the slower the better. They’re just rushing it now because they have been getting so busy but that is not my problem. You know what I mean?
Thanks Jason. It’s frustrating, seems like it should be done the same way every time. My Gemzar is done over an hour and I was told that is the only crucial thing. But to me, I think the fluids are crucial as well. I do drink a ton of water all the time!!
24k does not sound right to me either. I have insurance, but I know in the past my grandmother went there and she did not have insurance and was not rich either! Have you talked with your local oncologist about maybe trying to coordinate with Dr Javle? Best of luck to you!
Thanks everyone. Surely I will snap out of it soon!! I really don’t want to have to be on any anti depressants if I can at all help it!
Rvb
Dr. Javle told me a lot of Drs frown on transplants because when they first started doing them back in the 90 s the outcome was very poor. He said back then they were just doing them for anyone with this and now they know that it isn’t the best solution in all cases. Now that they look at the individual and what to test for the outcome is better.
Bompie,
I’m sure they just don’t really know what to do where your at. The oncologist I originally had in ft worth couldn’t even properly diagnose me. (She diagnosed me as cancer of an unknown primary) She put me through a colonoscopy, endoscopy, endoscopic ultrasound, mammogram that led to a breast biopsi, and a brain MRI and PET of course. She kept saying a CT wouldn’t show anything and that’s what MDA diagnosed me off of. I don’t see why your local oncologist wouldn’t work together with Javle. Best of luck, can’t wait to hear an update!
