danna0325
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danna0325Spectator
Thebompie4,
The number on Dr. Javles card is (713) 792-2828. But I think you have to call patient affairs for an appt. Also, if you google him somewhere I know his email comes up. So long as there are mets outside the liver transplant is not an option but later on down the road if the chemo kills it all and it stays that way for a while then it may be a possibility to see if I would qualify. He really gave us so much more hope than the previous Dr. He even went over different things to prolong my life if the transplant ends up never being an option. My previous doc just sad we’d keep doing different chemos till the no longer work. I have a son to raise, that was not good enough for me. Where is your husband being treated at? You may talk to your local oncologist about working with Dr. Javle. I do know that several docs do that. Good luck to y’all and remember that God is the ultimate physician!
danna0325SpectatorThank you Porter!
danna0325SpectatorThe reason they gave me about switching docs is if they did it whenever people wanted then they would be doing it all the time every day and it messes with your treatment. Good cells vs Bad cells, I have no idea what they are that was just his way of wording it in English I guess. He did tell me he thinks I probably have the good cells because if I had the bad ones then I would probably just be getting worse and not responding to treatment. The testing isn’t something that will be done right now unless I have enough tissue left which I don’t think I do.
danna0325SpectatorBob & Nancy,
Prayers for the both of you and for Jeff.
danna0325SpectatorGuess its different switching within MDA, I don’t know. When I first went there I was “cancer of an unknown primary” so that’s why I didn’t get Dr. Javle to start with.
danna0325SpectatorIt has kind of got me disappointed in MD Anderson. I’m going to talk to the director and if that doesn’t work I’m going to find someone else to contact. I’m not afraid to cause a big stink about it. I know the Dr. I have now is the assistant director in the gastrointestinal department so i don’t know if that may have something to do with it since its the director that makes the decision. I’m not very happy.
danna0325SpectatorAmir,
So sorry for your situation. I am stage 4 intrahepatic cc and have a 14 month old son that I worry about leaving so I understand the depression. But i also have a lot of faith and none of us are promised tomorrow even if we’re healthy. It is good that he is responding to the treatment. From what I understand if you keep responding well to treatment and take good care of your body so that the chemo doesn’t wear you down then you can live a lot of years with this. Take care and try and stay positive. You and your family are I my prayers.
Danna
danna0325SpectatorKris,
So sorry for all your going through. You and your family are in my prayers! I am 30 yrs old and have intra hepatic cc. I knew a girl years ago with thyroid cancer and it took a long time and some intense radiation but she got through it great! Take care, it will all be okDanna
danna0325SpectatorKris,
So sorry for all your going through. You and your family are in my prayers! I am 30 yrs old and have intra hepatic cc. I knew a girl years ago with thyroid cancer and it took a long time and some intense radiation but she got through it great! Take care, it will all be okDanna
danna0325SpectatorPfox- such good news that it is confined to just your liver!! Your port will be uncomfortable for a short time then you won’t even notice it anymore.
danna0325SpectatorHope everything went well for you today!!!
danna0325SpectatorThanks Gavin for the warm welcome!
Betzeegirl, sorry about your husband. I have heard a lot about Dr. Kato, if I’m not able to switch to Javle I am going to contact them. Thanks for the info!
danna0325SpectatorAticon,
There have been people who are stage IV and have still ended up with transplants so don’t lose hope. I too, go to MD Anderson but have a different Dr. than Javle but am currently trying to switch to him. I feel like he would be way more aggressive in treatment than the one I have. My current Dr. Is just doing the whole palliative care right now and that’s not good enough for me. I have a son to raise. Y’all are in my payers. Take care.danna0325SpectatorThanks everyone for welcoming me. Sorry if I miss answering some questions. Willow, how long has your sister had cc? How does her son do with it? Margaret, sorry to hear about your husband:(. Marion, the treatment just makes me fatigued and muscle aches for a couple days. First scan after treatment showed slight shrinkage and nothing new. I will have another one on the 19 th. Lainey, yes. Too wonder what the common denominator is w all the young people. Could it be our American diet full of taco bells and dr peppers?? Pfox2100, thanks for the welcome. I hope you have a good support system. Everyone on here s in my prayers
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