darla
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I agree that a second and maybe even third opinion are a good idea. With interhepatic CC there are often no noticeable symptoms until it is greatly advanced. The fact that you have no known symptoms is a good thing as that may mean it was found earlier than most and stable is always a good thing.
No posts are too long, the more information given the more help you will receive.
I also am not familiar with the facilities you mentioned, but hope you are able to get some good insight on what is actually going on.
Take care and let us know what you find out and how things are going.
Darla
Percy,
Glad things went well. Have to agree with the others as to the eating thing. As hard as it is to do or even think about at times, please try. Hope things start to improve soon.
Love & Hugs,
DarlaThanks so much for sharing your mom’s amazing story and taking the time to do it in such detail. Information that will hopefully help others. Hoping that we will be seeing and hearing more of these success stories in the future.
My best wishes to you and your mom.Love & Hugs,
DarlaDear Judith,
I too would like to welcome you to our CC family. This is the best group of people you will ever meet. Sorry you have a reason to be here, but glad that you found us. It sounds like you are both comfortable with the decisions you are making and that’s all that really matters. Know that we are all here to help and support you in any way that we can. Take care and let us know how you are doing.
Love & Hugs,
DarlaLinda,
Good to hear from you, but sorry for what you and Terry are now dealing with. From what you have said, it sounds like you are being very realistic and doing what needs to be done. Also sounds like Terry has a very good attitude and that is a good thing. If only believing could make it so, but who knows what the future will bring. Be it long or short, I’m wishing you the best on this journey that none of us wanted to or planned to be on. Being cautiously optimistic can’t hurt. As Kris mentioned, take some time to take care of you, too and let us know how things are going.
Thinking of you
Love & Hugs,
DarlaDear Lou,
Thinking of you and your mom as you go through this difficult time. We are all in this with you to help & support you in any way that we can.
Love & Hugs,
DarlaInteresting how quickly they got it together after being confronted. Too bad they couldn’t do it right on their own.
Keep it up Kris you are Marks best advocate.Love & Hugs,
DarlaHi Stella,
Just read through your posts and want to welcome you. Sorry you have to be here, but you are in the best place to be for support and answers. From what I have read, I agree that you need to ask the doctor about some of these things. Also a second or even third opinion would be helpful. Along with getting some answers I think hydration and pain control are most important at this point.
Let us know how your husband is doing and try to take care of yourself, too.
Love & Hugs,
DarlaEveryone has the right to be comfortable with the people they are working with if it doesn’t feel good, move on.
Hi Nan,
Don’t have much more to add but also wanted to welcome you. Sorry you have a need to be here, but glad you have found us. I agree the a second opinion is needed and that comfort and pain management are the most important things to deal with right now. Take care and let us know how things are going.
Love & Hugs,
DarlaThanks for posting that link Gavin. So true.
Ladies, All I can add to this thread is that I totally agree with everything that has been said. People who have not been affected by this disease just don’t have a clue. Kris, good for you on setting her straight. I think with what you are all dealing with, you have the right to let loose now and then.
Love To All,
DarlaKris,
Glad the decision has been made and you can now move forward. Hope things all work out for the best for you and Mark.
Wishing you both lots of luck & love on this next phase.
Love & Hugs,
DarlaLisa,
Glad to hear things are still going well for you and hope this continues. More surgery is never something to look forward to, but look to the end results and hopefully that will help to make it easier.
Take care.
Love & Hugs,
Darla
