deadlift

Off keytruda. Stable liver and lymph hit cancer spread to abdomen

On to folfuri

Well. She did feel a bit better after the drain. Only got 1000cc so not a ton. Had her on diuretics for awhile. Then gave her iv fluids last trip to the city, and moved up her next scan. This week she had ob/gyn and they checked her, way dehydrated, gave her 3 bags of fluids. Then she felt pressure again figured needed a drain. I took yesterday off to get her to the city as they were not sure any place local would give her a drain without her records. Bad logistics on our part. Course, sloan in the city said, no fluid, get on your pain killers and go home. Huge waste of time when she’s weak and tired and sitting up is uncomfortable Least they gave her some oxy after I asked. Like you know it’s a 2 hour drive, plus rush hour, plus she’s here cause she’s in pain and uncomfortable. Give her some drugs for the ride.

she’s now on the 12 hour oxy tabs. she has a script for the fentonal patch though she doesn’t want that cause then she can’t take baths or go in the pool.
Really a shit time. She fully expects the next scan to kick her off keytruda. I think next would be folfuri chemo, but I’m wondering if she’s miserable and on chemo if that’s a good choice. Wait and see what the doctors say i suppose. no need to suffer twice and think about it until we have to think about it.

I thought i was pretty common to always start with gem/cis if it’s inoperable before moving on to trials. I know with the ag120 you had to fail primary treatment first. May as well get that out of the way.

As to some being operable and others not. We’ve all been to high school. There are A students and D students. You never know what kind of surgeon you get. I’ve see seen that with my buddies wife and her surgical issues. She had her case presented to a team of doctors and nobody could touch it, then one doctors all “yah i can make that happen”

All depends on how good they are sometimes.

As to the oil and the cost. I’ve heard that it’s spendy. And insurance doesn’t cover it well etc. Though the oil can be more sleepy. My wife just smokes it old school from a bong. so depending on what she has sometimes it makes it harder for her to sleep cause it energizes her. Course she smoked off and on before cancer. The stuff I get for her is dirt cheap. Probably under 400$ for an oz, and lasts her a long time. Trick is to get the kind that keeps her low key. She’s said sour diesel makes her too energetic. She’s had good luck with purple haze and girl scout cookies.

Good luck!

I realize I wasn’t super clear. So trial was over a few months ago, so they kept her on ag120 since she was responded. Back in January she went from shrinkage to stable , last week she went from stable to growth. She is now visiting friends in Colorado and will start keytruda once they schedule all of that. All these treatments all seem to be , could shrink then not. Could go remission , or could do nothing.

Thanks for the kindness here

Seems like that was 2 weeks of constipation pain She changed meds to mirilax and changed her diet and seems back to pre pain levels or energy. Or a little less

This thread made me get benefits for my wife and then we got benefits for my son since she was on disability. So much help here thanks !

Thanks marions. Thag helps and makes stable sound more positive. Though this last week wife has new abdominal pain. She went back on oxy and that doesn’t seem to help. Waiting to hear back from her doctor when the work week starts. Went to er last night to make sure it want anything else and they couldn’t find anything and sent her home.

The only positive spin was her cousin was just in the hospital with severe abdominal pain and heh called it a virus and sent him home. Hopefully that’s it cause we saw him a few days after he felt better.