Eli
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Speaking of Reglan:
Reglan has a *major* interaction with Compazine. The two should not be taken together. The side effects can be very serious and irreversible.
You can read about it here:
http://www.drugs.com/drug-interactions/compazine-with-reglan-1946-1256-1612-984.html?consumer=1
Thank you, Lainy. Marina is indeed doing well. She is back to work part-time, after a year on disability. I will say no more, as our next scan is coming up on Nov 2.
Rachael, just so you understand. My wife spent one year on disability leave because she did chemo-radiation and chemo. Not because of Whipple.
Rachael,
Here’s a short explanation of Whipple done by Richard D. Schulick, Chief of Surgical Oncology at Johns Hopkins.
http://www.youtube.com/watch?v=5yPo7nLmA3Y
Hi Rachael,
My wife had Whipple surgery in July 2011, at age 44. I wrote about her Whipple experience in this post:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?pid=57484#p57484
If you have any questions – please do not hesitate to ask here or through email.
Wishing you all the best,
EliMarion asked me to share the Consenus Letter that she mentioned in her post.
Here it is:
CLIA Consensus Letter 10 12 2012.pdf
Hi Susie,
Thank you so much for posting an update. A belated Happy Birthday to you!
Sending tons of positive thoughts and wishes for a clean scan.
Hugs,
EliHi Ken,
I will add my 2c to what Marion wrote.
We see new medical studies coming out all the time that use CC cells grown in the lab. Many of these studies sound promising.
Here’s the problem though:
It’s very easy to kill cancer cells in a petri dish. Lots of drugs/compounds can do it if applied at high enough concentrations.
Unfortunately, it’s extremely hard to kill the same cells in the human body — and not kill the patient at the same time.
The road from petri dish, to mice/rat studies, to human clinical trials, to FDA approved cancer drug, is long and arduous. New cancer drugs take up to 20 years to develop.
That said, you are absolutely right. We need to see more CC studies. The CC Foundation (Marion in particular) does a lot of work in the medical community to encourage new studies. AMMF charity in the UK does similar advocacy work.
Best wishes,
EliHi Teresa,
To answer your question:
Quote:I was wondering, if there is any other reason the Bile Duct can become blocked without being Cancer?Yes, the bile duct can become blocked by a benign stricture. Unfortunately, the existing diagnostic tests cannot reliably distinguish cancerous and benign strictures. They look almost the same on all tests.
Benign strictures can be caused by:
* Inflammation.
* Surgical trauma from prior surgery in the area, such as gallbladder removal.
This is not a complete list. I recall seeing medical papers that discussed about 5-7 different types of benign strictures. I will post the links if I can find them.
Gavin,
The link works for me, even though I don’t have a Facebook account. So it should work for everyone. Good instructions.
This google search returns all forum posts that mention PDT:
http://www.google.com/#q=site%3Acholangiocarcinoma.org+PDT
I get 16 pages of links to the forum posts.
My wife had the biggest sweet tooth in the world before she got sick. She used to spend a small fortune on premium chocolates, desserts, etc.
She drastically reduced sugar intake after she was diagnosed. It didn’t happen overnight though. I had to work hard to turn her around. The AntiCancer book by Dr. Servan-Schreiber was very helpful.
That said, my wife is not exactly where I want her to be in terms of sugar consumption.
For example, she uses Agave syrup to sweeten her tea and coffee. She thinks it’s not as harmful as white table sugar. This is not exactly true. Agave syrup *is* sugar, just a different kind than regular one.
And if sweetened beverage was not enough, she likes to have toast & jam with her tea or coffee.
Oh well. I keep giving her gentle reminders, but I’m not going to make a fight out of it.
By the way, I reduced my own sugar consumption more than she did. Go figure.
Hi Art,
A belated thank you for answering my question.
I noticed a short discussion of ROS-1 in this paper:
The paper mentions an ongoing clinical trial of Crizotinib:
http://www.clinicaltrials.gov/ct2/show/NCT00585195
I’m guessing your tissue samples are being tested to determine if you are eligible for this particular trial.
Best wishes,
EliThanks, Gavin.
Here’s an article about this new program. The program does not target CC or any other hepatobiliary cancers. At least not initially.
http://www.sciencedaily.com/releases/2012/09/120921082809.htm
